ALS Twitching: My Experience

[Builderzfitfridays]

It is a question that disturbed me. Most of you say that you feel most of them... in my case, it is backwards: since i can feel some of them, most are "unfeeling" and i can only see or feel them "crashing" in my pants or in the bed. Sometimes, they looks like waves all over the muscle, and in my calves i have the twitches almost every second during 3 or 4 weeks. I have read that in ALS twitches are not ussually felt by patients, and in BFS they are. It is quite scared.As i say in other post, my EMG shows, of course, fasciculations (nothing more as far as i know).So, my question is, is that normal or, at least, frequent in BFS?

 

[ftheatre]

In my calves I have a lot of twitches I can see but not feel. I am not sure it makes difference.

 

[Gracer]

ALS twitches are not felt by ALS patients usually because they occur on the muscles already dead enough. If your legs still can hold you on, then i just mean that the twitches are just subtle, below motor activity you can feel. Quite a lot of fellows herer have twitches which they can not feel.

 

[TwitchyMD]

Look, I have had this crappy thing for more than 5 and half year, yet there are still new variations coming. I have had super rapid twitches, super slow ones, thumpers, subtle ones...Some I could only see, some were impossible to ignore. And still, every few months something new appears.

 

[LevenLevi]

Lots of in my calfes and don't feel. Scared me the first time just 'cause of the information i had from googling.But it's normal, twitches in BFS can be any way, heavy, light, slow, rapid, thumpers etc...Greetings,LevenLevi

 

[flyboy101]

I have twitches that can be both felt and not. Clean EMG, neuro and doc say I'm fine. Do I still worry, just like most of us, or course. Please, please, please stop googling twitching, it just scares the hell out of you. I have no doubt as well that those that don't have this or ever worry about it, if they stare long enough at a certain muscle, they will at some point see a twitch.

 

[anI3l3m4n]

I have had twitches that can't be felt, only seen (a twitch like that between thumb and index started this whole mess for me). Now most can be felt, some of them can be seen, some not. Many are like firecrackers going off in various locations as has been said - pop in thigh, pop in arm, pop in calf, pop in thigh again,...) they are gone so fast I can't see them, even though they feel like thumpers. Others move the muscle quite continuously (mostly in the legs) and visibly. I have had vibrations (foot, shoulder) - like a cell going off for weeks at a time in the case of the foot, 3 secs on, 2 off,... . Plus an anal twitch, eardrum twitches...Other times I am not sure if it's a rapid twitch or my blood pulsating, a really weird sensation.

 

[skenzie]

I think this is absolutely normal for BFS. It's your minds way of tuning out the 'noise'. Rather than worrying about it, enjoy the fact that you are growing accustom to it and the twitches are no longer such a physical disturbance.Mine are much more noticeable in terms of 'feeling' when I am anxious. When you're anxious abnormal sensations often become elevated due to increased brain signaling. This is thought to be the same reason individuals report stronger pain reactions when they are anxious/disturbed/scared, in comparison to pain reactions when at ease while experiencing the same stimulus.