ALS-like Syndrome Linked to Lyme Disease

[coolcat]

the national institutes of health has declared that an als like syndrome exists that is caused by lyme disease. please look at this very real probability that you may have been infected as far as 20 years ago...if you want to see it directly look up als national institute of health and look at diagnosing als...Im sure you will find this assuring that there may be a link and the reason why you may have a manifestation of some neurological problems..
eric
and for god sakes it reversable...

 

[EyeoftheWild]

Seems like déja vu, don't it!!

Listen Ryan, you are a great guy. You are a truly genuine person who has contributed quite a bit to this board. However, I think it would be better that you did not ally yourself with Mr. E. I went back to the site and question and did a search, and yes Lyme Disease does come up, but not, I repeat NOT, in reference to ALS. This site is called The National Neurological Institute and so it covers the gambit of neurological diseases. Lyme is not included on the ALS pages but rather on the Lyme pages. This is only one of the lies that Mr. E. tries to fob off on the unsuspecting. Most people would not have the stomach to go through these pages and I suspect that is what Mr. E is counting on.

Do you believe in a 20 year gestation? Do you believe in late, late, late stage Lyme or just late stage Lyme? Do you think people would be reassured on going to the ALS site when all they have is BFS and related anxiety? Your fellow lymie believes this.

If Mr. E is so determined to help people and persuade them that they have lyme instead of ALS, then he should go to all the ALS forums and see what kind of response he gets. Sufferers of BFS make easy targets because there is an element of anxiety which breaches our sensibilities. Further, if you wish to say that people should not utter death threats then name the culprit; there is only one such person.

Ryan, you know yourself that Mr. E was bragging about what he said to me the first time when he wished me to be afflicted with ALS. You also know that he called upon the Lyme-Aid troops to come to this site, on mass, and teach us, or more accurately, me a lesson. You also know that Mr. E does not feel at all healthy, although he pretends as much when he comes here boasting of how his twitches have disappeared.

If your Mr. E tacitly agrees to cease and desist his campaign of misinformation then I will also agree to say no more about Lyme.

You are an honorable man Ryan and I know that you are motivated only by good intentions.

Cheers,
Basso

 

[RyanBabz]

Thank you Basso for the complements. Let me make this clear: I am not an "ally" of anyone however. I also don't like the way the Eric presents himself on the board, but that's the way he is. I try to steer away from judging people and let others see for themselves.

I am only stating what I have discovered from either doctors or "legit" health boards. There is a connection with Lyme's and this stuff, as well as ALS, even accoreding to the ALS Association (as far as symptoms go). Yes, BFS does not equal ALS does not equal Lyme's. They are all separate diseases, that in different stages, etc, may have similar symptoms. Here is what is in the article, and what I'm trying to say:

Infectious diseases such as human immunodeficiency virus (HIV), human T-cell leukemia virus (HTLV), and Lyme disease can in some cases cause ALS-like symptoms. Neurological disorders such as multiple sclerosis, post-polio syndrome, multifocal motor neuropathy, and spinal muscular atrophy also can mimic certain facets of the disease and should be considered by physicians attempting to make a diagnosis.

That is all I am going to say about this stuff...I'm still learning myself. I never intend to offend anyone or anything, I only try to help.

 

[coolcat]

EyeoftheWild
you dont have als! that I can tell you is reality! you must put down your hands and exept that in some cases of an als like syndrome WITHOUT further progression it can be a manifestation of lyme disease or a co infection...you know this to be true,you just want to fight me and try to use banter to justify your existence of an incredibly scared young man..you know that the people who had lyme are no longer posting on this site as they have moved on, I stay here for the newbies to let them know that lyme is a possiblity and that it should be ruled out...
your friend eric

 

[LisaQ.]

I'm a nurse and I find this post absurd.
Just because Lyme can mimic ALS symptoms-what relevance does that have? There are other diagnoses listed there and so are you saying that we might have ALL of them? No, really? Why on earth have we subjected ourselves to blood tests, MRI's, EMG's, and spinal taps-certainly not for fun? No, to RULE OUT all of those other things so we can settle upon the reasonable diagnosis of bfs.

I went through the whole Lyme ridiculousness when I was desperate and in need of a diagnosis. I was sent to multiple labs, doctors and finally found myself in the office of a supposed "Lyme Literate Doctor" who did nothing to help me. She was very sweet, sent my bloodwork to the "correct" lab, but quite frankly, she was nothing more than a sweet, misguided quack.
I had a homeopath also diagnose me with Lyme by having me hold onto metal bars attached to some Doctor Frankensteinish type equipment. He then prescribed remedies for me to the tune of $800 per month that DIDN'T WORK! He too, was a quack.

I have bfs. Period. I don't come here to entertain the possibility of any other diagnosis. I am delighted that I do not have MS, Lyme, or some other rare neurological disease that is going to kill me. I twitch, I occasionally feel weak, but I live my life to the fullest.

I don't need to be "educated" about Lyme disease. There is a whole contingency of unfortunate sufferers who are being led astray and ripped off by quacks who are claiming to be experts in this disease, and I for one find it deplorable. The end result is a group of people, practitioners and patients who desperately need recognition and validation from the medical community and try to get it by recruiting new patients to join them in their misery. This is a severe disservice to people who really DO have Lyme disease.

If you are comfortable with your diagnosis, mazel tov, but please don't assume the rest of us need instruction. We are doing just fine, thank you.