Almost Made It: 10/31 Week

[tearsneverfall]

Well I almost made it!! It is 10/31!

I have not had a good week! I had to come back. In the past week my right arm, wrist and fingers have started to hurt a lot and feel tight, stiff and funky. Then about two days ago the twitching has really amped up! All over!

I did go for a second opinion neuro visit on Friday. He had my records and he did an exam and he agreed with my first neuro that I was okay. He said "your wiring is fine". He did agree to do an EMG on my right arm but I can't get it done until 11/9 which stinks.

When I was sitting there while he was filling out my chart, I said I will worry about that big time! He said "oh did your first nuero use painful needles?" I said no I'm not worried about the actualy test but the result! He said "oh don't worry we have the best hand surgeons in the nation here." I said again no not that that it will be ALS. He grinned and said I really think you are on the wrong track here and I'm not just saying that.

My arm feels so weird. It feels as though I won't be able to bend it at my wrist at times and sometimes at the elbow and my thumb, index finger and middle finger as well as wrist can get pretty painful. The twitching is driving me nuts. It's starting in places I have never had before like this morning it was in my heel on my left foot. Never had it there before. I still have lots of pain in my right leg.

I think he's thinking carpal tunnel but since I have the twitching and pain along with it you know exactly what I am thinking!!

My anxiety is bad again! Up until around Monday the month went well but this has really thrown me for a loop!!

I really wish my "I'm back" message could be more positive but I'm scared again, really scared!

Thanks for listening guys!

Oh I went through the posts where has StephG22 been? Is she okay? Anyone heard from her?

Thanks,, Karen

 

[vera]

Hey Karen!

2 Neuros are not worried about ALS...you shouldn't be either! I know how awful all the worry is, and how hard it is to keep your mind off of the bad stuff, but trust me it only makes things worse. Once you have your confirmation of the NO ALS diagnosis on the 9th, promise me you will put it out of your head!

You have a wonderful family to focus on, and they are entitled to a happy Mom! Make it your first priority. Once you feel fear slipping in, tell yourself you will not let it take over, and then go do something else. Because now you will KNOW it is not fatal. The aches, pains and twitches are a major reminder that things aren't like they used to be, but learning to live and co-exist with them is the key. Accept them, then give them no importance. You can choose to be fearful and sad about your circumstances, or you can choose to make the best of a bad situation and be happy for all the other wonderful things in your life that make you happy to be alive...

Kim

 

[Pixeldusty]

Hi Karen,

I guess I should say sorry you are back, but I hope you had a good time celebrating the special events you had in Oct. Please don't go down that road again. You're fine. You've had it for a while, you're still probably stressed with life in general,(and that can certainly make for weird symptoms), you've had 2 exams that I can remember that were clean!.. I would take it as a positive that the last dr. is focusing on carpral tunnel for the worst case scenario with your arm.

It also sounds a bit like fibromyalgia, not sure if you've ever looked into that. It has many similiar symptoms. I go through times when one of my legs feels very heavy and almost feels like my foot is swollen and is too tight for my shoe. It's like dragging around lead. It stays sometimes for a few days and other times it comes and goes. I've had Fibromyalgia for many years and was diagnosed a very long time ago but never gave much thought to all the symptoms I was having and if there was a connection.

Hang in there!