All Over Fasciculations Experience?

[Danners2Dan]

I read some post, and I noticed that most of you have only calves fasciculations. Probably I am wrong xDI would like to know, who have random, short, quick, and all over the body (even in private parts), fasciculations.. as I do.Thanks

 

[twinTwosome]

I get all of the above with the occasional hot spot. The hot spot is different all the time. Calves, feet, and hands are pretty much every day, but I do get little ones everywhere every day as well.becky

 

[bdaddyjohnson]

me me me me!!!! I have complete body twitching!!! However the majority of my twitching is in my calves, feet and hands. But I have and still do continue to get them everywhere; thighs, buttocks, stomach, temple, back, biceps, eyelids, you name it. Bodywide twitching is classic BFCS. Just look at my lip twitching--------->

 

[Danners2Dan]

Do you have many per hour? or usually few? My usual hot spot is the palm of the hands.. and sometimes the eye... xD (I hope any girl think that I pretend something because my eye twitching.. unless she would accept my inexistent pretentions xD hahha)I just feel few per hour, normally not very noticiable. When I am nervous I can feel it more often.

 

[BarboFour]

I get them everywhere all the time. I notice them most from the waist up because they bug me the most but I get them everyday from the waist down too. Everywhere.

 

[Danners2Dan]

I asked if you get many per hour because I read that if you just feel few per hour it is not good... I am worrying about that..

 

[twinTwosome]

I only feel a few per hour. Some hours maybe none at all. But they are everywhere. Today I have more than usual from stress and lack of sleep.

 

[BarboFour]

Its always different for me . Some days it could be like 10 to 20 per hour and some days just a few. I have never counted. I also dont think what you read was true

 

[Danners2Dan]

Well.. I hope what I read is wrong.. xDDo you feel it in your hands sometimes while asleep?

 

[BarboFour]

Well, I am not sure what you are asking. When I am truley asleep I dont feel anything.If you mean when your trying to go to sleep or when you wake up, yes I do. If I am awake at all it I feel it. I have watched other people sleeping and seen there necks twitch away so it does happen when you sleep. By the way the person I was watching is a very in shape younger person without any disease.

 

[Danners2Dan]

I meant when one is not truly asleep.. but just awake xDGlad to hear it is not that unusual.Daniel

 

[FantasticFurball]

Im hit by this all over. Feets and ankles all the time. Body, face, arms and calves sometimes more than others. If I count my feets into this its like once every second or so. But I am still able to walk and run...

 

[kylespike]

I get them all over too, with the ocassional hot-spot too like most others on here. I seem to get mine most after I do a sudden strenuous movement like turning over in bed and then relax again (at nearly 2m tall turning over in bed is strenuous ).

 

[Krackersones]

I just had another neuro appointment yesterday with Dr. Engel (the most knowledgeable and expert physician I've found to date). He had nothing really new to add to his analysis but I did bring up ALS again because it is always in the back of my mind. He said, "I don't think of you as a person with ALS." I also asked him if twitching presenting all over the body in a few weeks with no weakness is something he has ever seen with ALS and he said "I've never seen that." He's been treating people with ALS since the 1960s. He is still of the theory that my twitching is caused by an antibody produced by my immune system that is attacking or irritating my nerves making them quick to fire when the shouldn't. He said I am not impaired enough to warrant any treatment. He did no motor strength tests and I reported no motor problems other than the twitching. He did lots of sensory nerve tests that showed vibration sense loss in the toes and ankles and sensation loss in the legs. I asked about BFS and he said that just means you twitch and they don't know why but you don't have ALS. I always leave feeling like I had more questions to ask but I ask so many and many have no great answers. There is just uncertainty with this stuff or at least more than I like to have. My most worrisome symptom is brisk reflexes. He feels that hyperexcited nerves are likely to produce brisk reflexes because the nerves fire easily. He said he has never seen that in a book but it just makes logical sense to him based on his knowledge of the nervous system. Anyone else here with brisk reflexes and twitching?