Haileyside
Active member
Hi!Like others in this forum, I would like to share the fact that, after one year with this stuff (my fisrt neuro-surgeon appointment took place on the 12th September 2008), I'm still here, and I'm alive (I believe...)No weakness, no atrophy (even if, during this year, I noticed much more that I have bones in my hand and that people can have very different hands; I never looked so much at other people's hands as during the last year). Actually, I think I am a little bit stronger (at least, I am much more able to take my daughter - who is growing up and is now about 14 kg - in my arms and on my shoulders). And no cramps (I think I never had abnormal cramps).So, just some fascicullations wich come and go, all over the body, appearing a little bit more in the morning (when I wake up but before standing up out of the bed) and irregularly during the day. Sometimes it happens when I stretch an arm or a leg. I have some periods in wich it becomes worse, even almost painful, (and in which I began to pay attention to it); but even there, the last one was, maybe, two months ago. So, I can live with that.Even my need for Xanax for sleeping is decreasing: I took 0,5 mg every night (since 23rd October 2008) until the beginning of last week, when I began to take only 0,25 mg, and it was perfect. Next week I will try to finish with it. I think I am becoming more and more optimist, and also being able to manage with my mother's sudden death in November.I still don't know what this is (like everyone here), but if "this" is just this twitching two or three times per hour, that's ok; again, I can live with that. Of course, I will have an appointment with the neuro one of this days, just to check if everything is really ok. If it twitches, I think it's good to check it from time to time (once per year, maybe).But, anyway: if it stays like that, it's not so bad, it's not worth thinking about that and, at the end, we have to accept that, yes, we are going to die one day, it can be at 90 as it can be at 30 or 40; we have to expect to live until 90 but being aware that we can die in the next 5 minutes or tomorrow. That's why, if there is no reason to care more than everybody else, if all that we have is some twitching, we should live every precious moment of our lives without caring about our survival more than any normal being. Death will happen, it will be for good, so let's not waste time with it. Life is happening now. Let's live now, hoping and planning for tomorrow, but taking advantage of each moment and being what we like to be and as we like to be.Maybe this twitching will become a bad thing in the future, I don't know. But there are also many other ways in wich I can die or loose life quality before knowing it. So, I won't care about it, or I will, surely, loose life quality.So, for the newbies: you will die, but probably not from twitching. Go see your doctor, but if it's ok, don't waste more time.See youCarlos
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