Builderzfitfridays
Member
Hello everybody,First of all, two points: thanks for admiting me in the forum and sorry for my bad english, i'm a spaniard with a low english level, so please, forgive for all the mistakes in my messages, i will try to do my best.I'm afraid (as i can see, the same that other in this forum) about my twitches and all the symptoms around them. My first symptom were not the twiches, but some involuntary movements in both legs (like jerks, or reflex) and in my fingers. I could have one per minute, or only one per day. Two weeks later, i notice that one of my calves was doing something strange, like if a bug was beating inside it... and i could see that these "bites" were indeed involuntary muscular contractions inside the calve. I went to the doctor and he said that they were fasciculantions and they may be provoked by a high level of anxiety. In that moment, i believed him but (and you can understandme at this point) i searched with Dr. Google for more information... first result: ALS. Well, first i was scared, but it take to me only few seconds to realized that i did not have any other symtomps... until this very night, when i have terrible cramps in both legs. Few days later, the twiches were spreaded all over my body. From them, other symptoms that i could related to ALS: weakness in an arm (i could not perform my task in the gym, my arm just lost his strenght), general fatigue (some days i felt my legs as if i have been running 100 miles), paresthesia in both hands, insomnia (i could sleep but i woke up eventually at night with no reason), temporal slurred language, problmes swallowing, difficulties to breath... two of the most scared things was one day that, eventually, my left hand had an increased muscular tone. It felt with stifness and "bigger", and i could not close, this sympton last for 4 days. The other, one day o wake up in the middle of the night and i cannot move right leg, i have to "persuade it from my mind" to do it, but for a minute it was "death".I had and appointment with a neurologist. Conclusions: for now, difficult to determinate something serious. I didn't have clinical weakness (but i feel i have less strengt that a few months ago). My reflexes were brisk, hoffman pos. and jaw reflex po., negative for babinsky and negative for clonus, all symetrical (¿maybe beacause i'm a nerviose and anxious person?).My EMG, two weeks ago, showed fasciculations and some myokimias, but no more (no fibrillations or positive waves). My CPK level was quite high (near 500), all of the rest boold test, for now, normal.Now, i have a non-stop twiching all over my body: the fasciculations in my calves don't stop in all day, there are a few that i can feel but most i cannot (they are there every time i look), and eventually in arms, finger and the rest of my body (included my tongue, which is a twich-killing spree sometimes). I have one (from three weeks to now) in the little finger of my right hand which is persistent and i can provoke it if i move this finger. The jerks are some days missing and somedays disturbing, even in my jaw (sometime i bite my tongue).¿is it all of this weird in BFS?. With 25 years, i'm quite (very) afraid.Thanks for your attention and, again, sorry for my bad english.
)) think about it. This is what doctors call 'too many symptomes at once'. While anxiety can and will do it for sure, because it takes few hours for anxious mind to mess the whole body up. ALS symptomes are also irreversable - if the neurons died, they died, it has no remitting pattern like MS in which only fine sheet of myeline is affected. So should you really have your leg paralysed, it would not be back with you in a few time.Think also about the fact that ALS seldom strikes people of your age (unless you are not a soccer palyer, becasue I remember that the most impressive case of massive ALS-like disorder had happened twice to young soccer palyer teams but who knows what the hell they have to eat by the order of the coach - nobody still knows if they were not in fact poisoned), young victimes are usually have that disease in a close family history for several generations back.There is probably highly interconnected bunch of symptomes, including usually high background level of anxiety (may be diagnosed as OCD/GAD or not diagnosed but present) and a lot of neurological, musculosceletal and gastroenterical symptomes, often this is associated with hypermobility of joints (lack of proper collagene structure). Alltogether it might be diagnosed as BFS or sometimes as fibromyalgia (characterised by all what you mention plus specific tender points in certain locations on the body). Fibromyalgia (if not evident form the childhood) has first attacks usually in your age (and second big peak in forties, and this is probaly happens to me now), and it embraces well all the troubles you describe. If you read posts made by our fellow Saint christinasgirl123, you can see that fybro can be really debilitating but still can be improved significantly.But however called, or not called at all under any specific name, neuros usually consider that condition as benign because it does not involve deep disability (but causes a hell of inconvenience).Wellcome here, read the posts, be sure therer are a lot of people with sensopathies, bugs crawling, perceived weakness, fatigue, excercise intolerance, pains, cramps, jerks, bad sleep (sometimes VERY BAD), high reflexes, hoffmans anf jaw reflexes, Chvostek sign, TMJ, GERD, swallowing and speech troubles, tongue twithces, stiff or 'swollen' or really swollen limbs, feeling of tight bandage around the limb and name what else symptomes.And they all are more or less well being and of course alive.HugsYulia
i am trying to leave the "Google adiction"."Gracely": I see you are a veteran in this stuff hehe. I rode a lot of the post in this forum before i decided to register and wrote my experience. Yes, some of the symptoms fit at all, but others barely. Of course i assume that with "rare diseases" like BFS, each person can have some differents symptoms. Of course i try to think about the fact that, with 25 years, knowing that bulbar ALS as initial sympthoms is uncommon, and symptoms are irreversible (not a leg that first does not move and then it moves)... but i've read some stories of people who started with fatigue in their legs when running, temporal paralisis or speech issues... yeah, my fault, i shouldn't have read them, and the information in the internet is high biased... but it scares.Thanks a lot again for your answers, i will keep posting