Cindy,I write down all of my symptoms, and hand them a copy if they want one. I tell them my fears. They usually take it from there and give me a thorough neuro exam. Most tell me to meet them in their office, where they tell me the exam is normal and it's "stress" or as finally my most recent neuro said, BFS. He offered to do an EMG because of MY FEARS---he didn't feel I needed one. Since you've been so upset your doctor may do the same. If so, you may want to think about it for a day or two and call them back to schedule, or, if available, you may want one right then and there. I've also had them do EEG's and MRI's, but not recently and not just because of the twitching, I had dizziness, lightheadedness, etc. I will be praying for you but know that you're A-okay. Best Wishes, Denise p.s. My favorite neuro--found him several years into my BFS, who I'd go to every few years when I was "freaking out", (in CA before I moved), actually told me when I was desperate to know what was going on--think it was before BFS was a diagnosis, "who cares what it is---it hasn't progessed and isn't going to". He'd joke that I'd be walking in his office in 20 years and he'd be leaning on a cane and I'd be fine, and you know what....it's been 20 years and I just jogged 2 miles this morning! For some reason, I always left there believing him and was able to ignore the symptoms with that relapse until they went away. p.s. Initially they usually do a slew of blood work to r/o vitamin deficiencies, autoimmune, etc. Don't be alarmed if they do this, it's just being thorough.
Please say a prayer - any encouragement would be appreciated.Cindy
) Believe it and move on. Tomorrow will be a great day for you.DD