Advice for ALS Worries Needed

[MovingLess]

I am new to all of this... Several times during the summer I had severe cramps in my right arm. Mid September started developing a fasiculation in the fat part of my thumb, in the palm of my hand. Went back to my nuerosurgeon who ordered an MRI which was clear( I had cervial fusion C5,6,7, in March 2007) and he said that I should be tested for ALS at once. Needless to say I FREAKED out. Saw a nuerologist early November and he did a physical workover and said you do NOT have ALS, I think it's associated with your neck and we dont need to do an EMG... call me if anything changes. Well things started changing pretty rapidly. Fasiculations in almost every muscle I have, severe fatigue and even some perceived weakness,,, on top of that I was still freaked out. Went back to the nuero last week and he did a needle EMG in my right arm as that is where the fasiculations are the worst. It came back negative. Again he said I dont have ALS. That spot on my hand NEVER stops twitchingand my nerves are shot. He gave me seratalin? and ambien which has allowed me to sleep. Today my neck started twitching and my arms have a dull ache. Am I freaking out. The nuero said that I have not lost strength and a host of other reasons I dont have it... why am I still so stessed?

 

[Smiley20]

Try not to worry. Easier said than done, right? The Neuro told you no ALS. I know that when I was so upset and worried, my symptoms severely increased as well. Try to rest and use the Ambian just for the short term help. Read as much as you can on this forum as there is lots of help here. Take care,Amy

 

[MovingLess]

most people here experience changing and migration of symptoms, it is part of bfs and nothing to worry about. believe your neuro when he says you don´t have als,he is the expert.it takes time to really calm down and even if you got an all clear your symptoms will not all of a sudden disappear. always keep in mind that bfs is a benign condition, scary sometimes but not life threatening!!

 

[BarbiePetals]

thats just it... I mean, in my mind, I keep thinking I still have that dreaded thing when twice over a two month period I have been told that I do not. I have had alot of stress but I really hadnt noticed it being "that" bad. My hands are aching and I am exhausted. This summer I was rattling off 50 pushups at a time, now I can barely get 30. I dont think I'm weak, just tired. My heart wants to listen to the 60 yr old med school educated nuerologist, but my mind keeps telling me I'm sick. Heck maybe I need a shrink