A Hellish 10months with BFS

[InkedMama]

Hey all. Its been awhile for me. I am not pregnant anymore, I am blessed with a beautiful 3 month old daughter right now soon to be 4 months and I am enjoying every moment of it. It has been 10months with this hell of a BFS. It started like it did the time before with a twitch in my thigh that spread over my body over night..Not a place dismissed. I saw a GP who laughed at me when i mentioned Lou Gherigs..he asked I see a psychiatrist as my exam was fine etc. I didnt find it funny and I actually already had a appt. w/ a psychiatrist. I walked out of there atleast with a little peace but it didnt last long @ this time I was I believe 3 months pregnant. So I seeked out a Neurologist. Lucky me she was the Cheif of Neurophysiology. She got me in the same day because I was so upset over the phone the nurse worried about my well being being pregnant and all and this upset.She did a normal exam (neuro exam) and I passed with flying colors. I left out of there feeling great. Fast a month later and I had anoter freak out because I did not get a EMG. This time I went again and she stuck me on the EMG table literally. She was so calm and comforting and even before she put the needles in me she said this is not als. I assure you. She did the whole right side of my body. I believe 14 sticks, 10 diff muscles and a lot of different rotating insertions..Movement of the needle. She found one small fasic and said "there ya go, BFS". 1 fascic w/out any other occurence.I never went back after that day though I have had a plethra of strange phenomenons.While I was pregnant I got carpal tunnel and I cant say they are back to normal yet as they both cramp and hurt. It could just be BFS I dont know. In NOV I will have suffered graciously just through bfs 11 months.I guess I am just looking for a little reassurance today.Today isn't a bad day but the last few days when I was stressed I had them soooo bad I could hardly stand it.Im usually here to help people but today I need a little bump.thank you,Lovely

 

[rumzcaneconundrum]

Lovely Glad to see you posting, I wish though you were posting to tell us you feel Great and no more twitching or worrying. Congratulations on that wonderful baby...Here is your reassurance, you do not have ALS You know in simple words, it doesn't present like that. You would never have cessation of symptoms only relentless progression of symptoms that don't look back. You having a period of no symptoms is living proof you do not have any sinister disease.Go enjoy that wonderful blessed gift and stop worrying about diseases you don't have.....Terri

 

[edadoStar]

Hi new mummy!You have not mentioned anything that may be cause of worries. More importantly, you had some many investigations that it unthinkable that there is anything sinister ongoing with you.Once again we are left with the mistery of BFS, but the anxiety shown by all of us somehow imply that this is the wrose bit of the condition. We may argue that it could be even the cause, but then we should be certain about what causes anxiety itself.We feel a bit like dumped by our young bodies, a kind ol loss of control, which is upsetting.But, you're doing well. Baby is growing up and that's the best part of all.