A Bad Day Alone: Symptoms

Highlights Only
A

apexpredator

Active member
Today is a bad day. I woke up internally shaking in the neck shoulders and arms. It calmed down after a while but if I sit and listen to my body I can still feel it ever so slightly. I slept long enough but somehow I still feel tired and terrible. My husband is working late tonight, I'm alone at home and I'm google searching my symptoms which I know is the worst thing to do, but like most people on here, I'm just looking for the right words to give me piece of mind.I've worked myself up into an anxious state; when I get like this I don't eat, and I'm scared to even move if that makes sense.I can't believe this all just happened a few weeks ago. I feel like my life has irreversibly changed and I'm angry at myself for getting so upset and triggering all of this in the first place.Lunabug
 
Lunabug I'm with you, just spent 20 mins surfing the ALS forum. I have today terrified my 8 year old son and my mother, *beep* off my husband struggling to do 3 jobs and spend time with his beloved boys. I'm sitting drinking wine googling *beep* symptoms to stave off taking prescribed drugs. To be honest reading the sticky threads on the ALS forum helped me a bit with my symptoms but proceed with caution, I feel a bit of a fraud and a coward. 3 weeks ago I had a great life, obviously I still do except my neurotic and hopefully delusional compulsion that I have ALS wrecking me and my family big time. I'm trying to think to myself, right mrs get a f£&ck&! Grip if you have got this then wtf are you doing moping and googling? Get with the real world and enjoy whilst you can. Some folk go out for some milk and get mashed in a car wreck, end of. Sorry, harsh but some wine involved xx
 
Hey, it looks like we joined around the same time. My symptoms also started a few weeks ago. How did yours happen?My fear is this internal shaking won't stop and soon it will be outward and disable me. There, I said it. Now it's probably going to get me, haha.Lunabug
 
Hey LunaMine started with this twitch in my left palm under my pinky about 20 days ago. Hasn't gone and since then i have had twitches in the shoulder and forearm on the same side. No actual weakness though which is good but cramps sore hands and arms. Two boys as gorgeous and sweet as could be. I have suffered health anxiety In the past but nothing like this which by nature of that condition I have convinced myself is more ominous. Doc has given me anxiety meds and I see a neurophysicist on Tuesday evening.My consultant said "rare things are rare and common things are common" bear this in ind and enjoy your weeken, feel free to pm me xx
 
Hi Luna,practically you understand well that you are doing alot of suffering by your own hands, so to say. This could be a good start Fore recovering.I was in the same situation, and I also freaked my family saying that I might have ALS. But what really had helped me was a kind of contraphobic behaviour... often our last resort, really. Your fear is that your body would betray you? That your shaking would become external and disable you? Ok, give it a chance, Move, DO NOT TEST yourself, just move, do whatever you do daily. IF your body is really going to betray you, it would be obvious and then at least you can call yuor family and say hey mom is disabled from now. Until that nothing bad had really happened. Maternity is a great deal of stress, and the fact we love our stressors can not help to relieve it. I only can say that this would be resolved some day. And not in a disability way, unless you did not frighten yourself up to.
 
Hi Gracely,Thanks for writing. Your challenge is very scary! My fear is telling me if I accept it, I will get worse. I'm hiding out in my bed today. How did you find your courage to live your life when you were most scared?I don't mean to sound glib, but I have no fear of ALS. I know alot of people do on here, and I sympathize. I dont even fear the twitching. But I am petrified of the shaking; it isn't normal and its been over 3 weeks since it started. If it was just stress and anxiety, wouldn't it have gone away by now? And it hit me so fast and in so many places in my muscles, it's too overwhelming.By the way, I'm not a mother. I have a mother, though, thank heavens. She's actually asleep next to me; I called her crying like a big fat baby to stay with me so I wouldn't be alone today.Lunabug
 
oh-and PS-your neuro will not necessarily attribute your tremors to BFS, but trust me, they ARE. There have been many, many, MANY of us with this particular symptom; the ratcheting, the bobble-head, the internal tremors, even the feeling of being on a boat that is lurching from side-to-side. I've had every tremor you can possibly imagine, and it really S-UCKS, but I do not have this symptom at all now. I even just now looked at my hands and they are perfectly still. I read your previous posts and you seem to have had a flare up just like I had, years back. I'd been twitching on-and-off over the years and had never paid it any mind, but then BLAM! I was struck with this new onset of tremors, (and for me,) severe perceived weakness, bladder spasms and all other kinds of madness. It certainly got my attention then, and I had never thought to draw a connection between the twitches and the tremors, because the twitches were just so inconsequential to me. In fact, my fascics were only a means to finding this forum, and learning about all of the OTHER neurological manifestations (tremors, etc) of this condition. I've often observed that "BFS" ought to be sub-titled, "benign effed up nervous system syndrome" because it encompasses so much MORE than just twitching. You're in a season, but it isn't permanent, and it isn't disabling. Your BFS is reacting to the additional stress and anxiety you are feeding it, and this too shall pass. I promise you, I tremored terribly and was terrified, just as you are, until I heard from others that it is part of BFS too. Blessings, Sue
 
I totally subscribe to suzyQ. And i love your " benign effed up nervous syndrome" :sick: i knew that my tremors ( I had all of them she described) were BFS related because they started together. But no neurologist ever thought they were related. Well, but that is what it is. Tremors are one symptom of it
 
Suzy, thanks for this post. It's really reassuring. I hope I come out of it just like you did. I have a long way to go in controlling my anxiety. Lunabug
 

Users who are viewing this thread

Total: 1 (members: 0, guests: 1)
Back
Top