NHLplayersJaromirJag
Member
Hello everyone!I thought I'll drop by on these forums after a long while, to say how have I been doing. I started to be concerned about my twitches around 7 years ago. Just like almost everyone, I thought it's something serious and that my days are numbered. Yet 7 years later, I'm here! Still alive and kicking. I actually never went to see a neurologist. And by now I assume it can't be anything serious, since I'd probably figure out by now. Has the life been difficult to me, regarding the fasciculations you wonder? Hmm. It's hard to say. After fw months of worrying my ass off at first, I kinda stopped paying attention. Tried my best not to. Since as you know, anxiety doesn't help. I think that for the time being, all these years, my calves been always twitching 24/7. It's the worst in calves. And I often get these random twitches all over my body. At times they're quite strong and annoying, but mostly I'm not even paying attention to them. Way worse than twitches themselves are cramps. I get cramps in the most weird places! Often in my chin when I yawn. I am greatful for one thing, I never get them while doing sports. But I often do when I'm done, and my body is tired. But it's still not that bad. It's not anything I'd call major. But another problem I am facing, is... parasthaesias/ neuropathic pain/ whatever it really is. It doesn't happen often.. For example, sometimes I'll feel this weird pain I can't even describe, in my arm or somewhere else. Usually it lats a second. But plenty of times by now.... Sometimes I'll get similar sort of pain in my face, in my cheek. Nothing is there, nothing hurts more when I touch it or feel it up.. At the beggining I thought it's just all in my head. But then the pain got stronger, and I knew I'm not just imagining it. This weird sort of cheek-pain usually lasts for few hours.. And gets worse and worse.. And most of the time, for some reason, it ceases when I go to sleep. I wake up as if it was never there. What actually brought me to these forums, is something.. new. For few days, I've been dealing with something similar to this cheek-pain, but on the other side of my head, and kinda.. more "inside there". For one day, it was very major.. To the point where I couldnt' focus on anything. That was, 2 days ago. But the pain is kinda still there. What's weird about it is that it's very.. "fluid". It kinda moves all over the right side of my head. All the way up and down to my chin (which made my chin fasciculate alongside it few times). I don't know.. it does feel weird, I hope it goes away soon, it does concern me... But it very well might be some sort of tooth-ache or gum-ache. That was my initial thought. I can't literally say it's one of my teeth, but you know how complicated those nerves can be. The reason I never went to see a doctor about it all, is because.. I try to aboid them until some symptoms seem really major. I'm not afraid to be diagnoesd with something serious. Because I'm well aware that the fact whether I'd go to a doctor or not, wouldn't really affect whether I have the disease or not. What I'm afraid more is being diagnosed with something I don't have. I'm relatively young. Turning 23 this june. So yeah, I've began to twitch quite early as you can count. I lost hope that BFS will ever leave me. If it planned to, it probably would have by now. But that's okay, really. I don't mind the twitches or the cramps. What I do mind is those weird pains I sometimes get. And the pain I've been having for past few days all over the right side of my head. But hopefully it's not something to do with BFS. Hopefully it's a toothrelated problem.. I say that, because I'd rather manage to fix it and be over with. If it's related to BFS and this kind of pain returns to me once in a while lik the "cheek pain" that I've mentioned.. *Sighs* It will be difficult. You see, I think that one of the most difficult parts of having BFS, is never knowing whether something new weird that goes on with your body is related to BFS or something completly different. I think it's best to ignore all these symptoms for as long as it's possible, and just end up going to a doctor when they get really serious. I know it's easier said than done though.. If you're reading this and you've found out you have BFS just lately, I can just tell you it's not something pleasant to have, but many people have it much worse. Generally speaking, it doesn't affect my life much, maybe perhaps my mood when I get those pains and/or worry. I think the anxiety that usually comes along it at first, may affect your life way more than BFS itself. It's not the end of the road! You just have to stay encouraged.Greetings from PolandPaweł.