7 Weeks of Twitching: April 1 Year

Highlights Only
Lucky, you are so much luckier than you realize sinse that is the only part of BFS you have to deal with. I am sorry that it has come back to haunt you though.Take care TSRobynn:)
 
Your very lucky in the fact that you have weeks with no twitching. I have had not 1 day within the last 2 years where I didn't twitch. Some days I know I had 1,000's. You seem to have a mild form of BFS so consider yourself lucky. It could be alot worse.
 
T.S.,Even though I've not gone one day without twitching in 1 1/2 years, I am better on meds AND did recently have a major flare-up in my left foot like just like you described. It was crazy. My foot was constantly in motion, contorting, toes moving. I also had trouble with my sleeping issues during that time. It was scary and didn't stop for about 3 days. What the hell is this?Hope yours has stopped as well. I understand.Terri
 
DARR, YOU HAVE NO IDEA HOW MUCH I TWITCH. MY FEET RARELY SHUT UP, MY LIPS ARE GOING EVERYTIME I COUGH OR YAWN OR GET WORKED UP. MY RIBS TWITCH AT LEAST 100 TIMES A DAY, MY BACK TWICHES, I'VE HAD A CONSTANT FOREARM TWITCH FOR OVER 2 WEEKS NOW. I JUST DONT CARE AS MUCH ABOUT THE TWITCHES BECAUSE THEY ARE NOT WHAT IS SLOWING ME DOWN. THE PAIN AND STIFFNESS IS WHAT IS SLOWING ME DOWN.EVERYONE WITH BFS HAS SYMPTOMS THAT BOTHER THEM MORE THAN OTHERS. AND IF YOU DIDNT NOTICE I WAS NOT THE ONLY ONE TO TELL TS THAT SHE IS LUCKY TO HAVE WHAT SEEMS TO BE A MILD CASE. WHO CARES HOW MUCH ANYONE TWITCHES. SOME HAVE CONSTANT CALF TWITCHES AND ALOT OF US DONT AND HAVE THE RANDOM HIT AND RUNS, BUT THEY ARE FREQUENT. IT TOOK ME A WHILE TO NOTICE ALL MY TWITCHING IN THE BEGINNING BECAUSE I HAD NO IDEA THE TWITCHES WERE A SIGN OF ANYTHING BAD AND I HAD MORE SERIOUS THINGS ACCURING THAT THE NEURO WAS LOOKING INTO. IT WASNT TILL I JOINED THIS BOARD THAT I REALIZED THE TWITCHES WERE ALL OVER ME, I JUST HADNT CARED BECAUSE AT THAT TIME I COULD BARELY FEEL MY LEGS AND I COULD BARELY WALK.THERE ARE TONS OF US ON HERE THAT HAVE WAY MORE GOING ON THAN THE TWITCHES, TWITCHING IS A GIVEN WITH BFS, WHETHER OR NOT YOU GET SOME OF THE OTHER CRAP, SEEMS TO BE A CR*P SHOOT.
 
ok just have to address Randy's comment that people who "only" twitch have bf and not bfs.This is incorrect and stems from a misunderstanding of the word SYNDROME in modern usage....can you have sudden adult death syndrome without the death part?The DEATH is the major part just like in bfs the FASCICULATION is the major part.Im not saying that people who have sensory issues don't have bfs Im saying that without twitching at a level that is WAY outside the normal range. You cannot possibly have bfs. You have some other syndrome where twitching is the minor UNMENTIONED part in the title...can I suggest sensory symptoms syndrome? In any event your incorrect in your statements.Robynn I dont believe you and that is my choice to make. I hope that you continue to help the people that you do on a daily basis and that you find peace with your own symptoms and mental problems eventually.
 
Darr your warped brain needs far more intervention than mine. I bet if you put down the ALE or Larger or whatever you got going over there, your twitching would stop being such and issue.
 
Theres not a tailer park within 100 miles of me Darr, nothing but weeping willows and vinal siding and brick, as far as the eye can see. :D) Seriously Darr, you really need to relax a little.
 
uh-huh Randy maybe you need to read my comment again before you put on your own cowboy hat there bub (it is bub isnt it?)Your the one dx'ing me with bf and not bfs.Ha-larious.
 
TS, what I said is being mis understood (again) and I hope you know me well enough to know that there was no ill will in my response to your post. I was simply trying to offer you some solace in the fact that it could be worse. So sorry if you took it to mean that you dont suffer much. I know this stuff sux.Take careRobynn :D)
 
You mean we are not good friends bub?Listen bub, your clearly confused and I hope that you find help for that. Im on my horsey and I have to say the view from up here is great...you could almost say that im looking down on you Randy... See ya all later.I have decided not actually to take pms anymore and to delete this board from my browser.Sorry to anyone who was in contact with me this way.I wish you all the very best of irish luck.A big thanks to Robbie,Diane, Leslie, Chris, Guy, Mary and Sam all you guys are awesome and you have really helped me through what was and is a difficult time. Its a shame I dont have bfs like Randy and mommyLDN becuase with all my twitching and lack of anxiety I thought I might have actually been able to help people and not just indulge myself in some kind of freaky onanistic pity party.Alas,such is life.Your probably better off without me anyway...nobody wants someone who actually doesnt have bfs hanging around commenting on every post and suffering from every symptom imaginable that isnt actually related to benign fasciculation syndrome...oh wait...thats exactly what you want.
 
I changed my mind, I aint going nowhere yet.Take care all and I hope this board can return to its original form so that people can get the help and support they need.Robynn :D)
 
Randy, that you read me as condescending is fine...I live by barthes and il die by barthes.... but i have never ever downplayed sensory symptoms. I have never said anybody was "lucky" to "only" have sensory syptoms or anything like that.I totally agree with the premise that some people are more bothered by pain than twitching but I draw a very large line when people say that people are "lucky" to " only " twitch and so on like robynn did.I too have suffered from sensory issues that are in my case transcient.The quote that you quoted from me in no way plays down sensory symptoms at all in any way.
 
lol, well fair play.Tell ya what we'll have a good old fahioned scrape and the loser buys the whiskey...I was never playing down your syptoms(im in the same boat myself) and I think that you know that.Im glad that im leaving on a jokey, light hearted note.Goodbye all.
 
WELL CERTAINLY ALOT HAS TRANSPIRED SINCE I LEFT THAT POST!!!!!!!!!!!!! I didn't take any offense to anything Robynn said at all. I know she meant well by her post. I do have a mild form of BFS. I would have said moderate - slightly severe in April and May of 2010 but after reading all your post I know I am lucky. I hope everyone has kissed and made up since this all happened. You notice I posted under the SUPPORT group. Let's not get fussy with each other.
 
:LOL: Sometimes it's healthy to get things off your mind, Darr is just a little high strung(and so am I). And nobody is lucky to have any form of BFS, just some people dont get as bad i guess. Again I am sorry to hijack your thread this way and I pray yours slow back down soon. God BlessRandy
 

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