36yo Woman seeks Support & Advice

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J

jcpotter

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Hello all,Let me start out by saying how grateful I am for this forum! I've been a reader of this forum but never a poster until now...I have been driving myself & my family bananas with all this twitching garbage and I finally decided to "throw" my story out to you and get some feedback.I welcome ANY input regarding my situation! Thanks SO much in advance!Personal Stats:I am a 36 year old woman Stay At Home Mom with four kids ages: 17, 14, 3, & 5 mos.My Twitching History:2004 - I was in a HIGH stress job an an Executive Assistant for the President of a Development Company and my eye started twitching constantly (over two weeks). I felt "creepy crawly, twitchy" sensations all over my body and actually took myself to the ER (a nurse I phoned thought I might be having a stroke). They did a CAT scan of my brain and diagnosed me "Stressed" and told me to start exercising regularly. I went home, Googled twitching and started taking B12. I left that job & soon after, & twitching stopped.Summer 2007 - We moved from California to Montana while I was pregnant with my last baby, my eye started to twitch again. Lasted for about 4 weeks. Then both eyes started twitching randomly throughout pregnancy.March 2007 - General Practitioner put me on Celexa for the twitching after birth of baby, it didn't seem to help. Twitching moved from face to outside palm of hands, calves, abdomen, back, etc. NOW: Doctor put me on Zoloft instead of Celexa recently because it's better for breastfeeding. NOTHING is working. Now the outside of my bottom lip has been twitching for almost 2 weeks (right after I talk or squeeze my lips "to test") My eye muscles still twitch, my hands, calves. etc. NOW I am having Night Sweats for the past couple of nights. I don't think I have any muscle weakness. I do have tingling/heavy sensations in my left leg/foot but that is not constant.I have an appointment with Neurologist but they can't get me in any sooner than Sept 29th!! WHAT in the heck do I do until then? Sorry guys, I know that this is a lot of info. I am SO tired of this and SO tired of the anxiety associated with it.Thanks for any insight you can give me.-Jeannie
 
Jeannie, Trust me you are fine. The night sweats i had when i went thru the ALS bit, terrified me lost nearly 2 stone hardly slept etc..All caused by Anxiety and Andrenalin dumps in your body. No real weakness no ALS plus the amount of time you have randomly twitched. I had the lip the eye etc i'm still here and i'm fine...dont worry needlessly. Classic BFS ...welcome aboard
 
don`t worryI m sure you are fine, I started just like you, eye twitching, sfter some time lip twitching, then other parts of my face, two years later I began with foot and toes twitching ten months non stop.I had two clinicals, one emg and I was told everything is fine, nothing to worry about. what you have is tipical bfs.
 
Jeannie,Yes, this sucks. For many people this moves around and ends up in the calf/foot. At least that is my case and seems others from my readings on this board.Though some people it seems to keep moving.I sometimes think of this as the thorn in my brain. St. Paul was given glimpes of Heaven but then given an ailment to keep him humble. If nothing else, this definitely keeps me humble.Keep going.-43RichyThe43rd
 
Just a quick note on night sweats as I dont have the prolonged course of twitching that many others here have. A true night sweat is not what most people are aware of. Most people will have some sweating at night due to anxiety, environmental conditions, hormonal conditions, etc. A true night sweat is a dreanching, soak your clothes, sheets, blankets and down into the mattress sweat. Even though seen in more serious conditions this is most common in the setting of a benign viral illness. I dont think true night sweats would be related to BFS but the disease process has so many variables, who knows. PS. Your twitching seems par for the course in terms of experiences by the contributors to this site.Talk to your doctor about medication dose changes or addtional temporary meds to get you through these periods of high anxiety.
 
Hi Jeannie, welcome to the group. Your symptoms sound like typical BFS to me. I am very warm at nite too, but I am going thru menopause and I also have thyroid issues. Lots of things can make you warm at nite. Try not to worry. I think you are fine.Linda
 
When I was experiencing my worst anxiety I would have night sweats. They may not be relevant to BFS, but to anxiety. Nothing you've described sounds new here. We've all had it and done it. You're find. Good luck waiting on the neuro appt.BlessingsCindy
 

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