31-Year-Old Female: Fasciculations, ALS Worries

[Snowball001]

I am 31 year old female, who started having fasciculations in late August 2011. I just want to share my story and my symptoms and get some feedback. It started during a very stressful time when my father was diagnosed with cancer and was being evaluated for ALS (but they said he does not have it even though he twitches like crazy). It started in my right calf, then my left calf joined in. My right leg is smaller and has less muscle bulk (my neuro confirms this). Then, my right foot arches and recently my left foot arches started. The foot arches and some calf ones are usually not felt just super fine but visible. 85% of my twitching is in my right leg. Other twitches I totally feel. I also get cramps left hand and in my calfs and arches, mostly on the right. I do now have some twitches in my left arm and back and left hand with rare instances of right arm. Of course my twitches extend up my legs to my thighs, hamstrings and butt on occasion. I had two clean EMGs showing just fasics like 1-2 weeks into this and they said its BCFS. They only did my right leg, the smaller one. Since then my cramps and twitches are pretty constant, also getting buzzing spots. I am scared about the smaller leg and the pattern (not really widespread). I am very scared.

 

[ShannyB63]

Hi there, and yes your one of us...welcome...believe your neuro...two clean EMG's is fabulous....don't be worried about your pattern of twitching, everyone is different...buzzing is also very common with bfs and bcfs.. 90% of my twitches are in my feet and calves..the rest are just random....it's all bfs...please don't stress....keep posting u will get great support...best wishes shannon

 

[Gloria123]

Your symptoms sound a lot like mine with the feet and calves, predominately the right leg. I also had an EMG on both legs that showed fasciculations. And, this all started in July for me.Welcome to the club! Try to find ways to reduce your twitching and cramping and try not to worry about them. I sure hope your dad is doing okay.Mitra

 

[TyrianLan]

Same here! 90% of fasics in my calves and archs. Don't really notice them unless I'm really paying attention or looking. Also have the random ones everywhere else. I have a host of other symptoms too. Tightness, pressure feeling, aching, burning. Legs just feel off, with the left leg feeling more off than the right.Clean emg with only fasics shown.Seems like you fit in quite nicely here.

 

[SimonaStar]

My right leg is even thinner than my left leg but has been 3years. have old pictures looked, and saw that it was already so before 3years!But I'm still scared!Previously, I have not just noticediimm so in fear!!!

 

[Snowball001]

Thanks, for alll the support. I feel more BFSy everyday )