I have had BFS-like twitches for most of the past 3.5 years. Over the last 6 months, however, I have bouts with "jerks," mostly when sitting/lying still. They happen most often when I am in between being asleep and awake, but also occur while wide awake but sitting still, and also when I lie in bed awake in the morning. Most commonly involved are my shoulders, thighs, and neck. Sometimes it's a wrist, finger, ankle, but mostly it's closer to the trunk. Happens on both sides about equally. I know that many people here mention having sleep starts / sleep jerks. I'm not sure if what I'm experiencing is quite the same, however. They're not "brain zaps" - they don't "take place" in my head at all -- strictly in the muscles. Also curious is the fact that it waxes and wanes -- I may have a serious issue with it for 4 or 5 days, then it diminshes greatly for a week or two. Around the same time that the jerking began, I also occasionally experienced "ratcheting" muscles. That also waxed/waned, but hasn't been much of an issue since going on paroxetine.I have GAD (primarily, health anxiety) and am on paroxetine currently (SSRI), which I know has muscle movement side-effects, but I've noticed this particular problem for 3 months longer than I have been on that drug. Also seems odd to me that this would start almost three years into my BFS adventure. Makes me wonder if it's not at all related. I made the mistake today of consulting with Dr. Google regarding myoclonus, and find no mention of anxiety in the causes of such jerks that extend beyond the typical sleep starts. Only bad things.
My primary concern is Parkinsons, as I have what I would consider to several risk factors (age 48--getting close to the time frame for that disease....a serious head injury as a child--risk of PD increases from under 2% to closer to 20% for those w/ serious brain injuries....various essential tremors--another increasing risk factor). Combined with the various other neuro things I've had going on over the past 3 years (twitches, occasional tingling, numbness in fingers when sleeping, ratcheting, jerks, etc.), it's often hard to keep my health anxiety under control. I've had several appointments since the twitching started with a neurologist, who was convinced that I was a basket case anxiety-wise, and wrote everything off as anxiety-related. I have had 2 clean brain/cervical MRI's, and a clean EMG/NCS. Those were all before the arrival of the jerking, however. I have not been officially diagnosed with BFS, but do feel that it would be appropriate, with regards to my twitching. Not so sure about some of this other stuff, though.I have an appointment with a new neurologist coming this fall/winter. In the meantime, I'd appreciate hearing any insights into the jerking that any of you may experience, or any comments on the above information. Thanks in advance!
