24/7 Twitching Foot: No Twitches!

[MsMaverick]

So, I go to my neuro appt, and it goes like thisR:What problems are you having?When did this start?What else was going on right then or right before?Did it get worse AFTER you googled twitches? (I hadn't mentioned google)And now your afraid you have ALS?Let's get this taken care of.He does a clinicle exam, looks me over-THE FOOT THAT HAS BEEN TWITCHING 24/7.......not one twitch. If I had a saw I would have cut it off. I couldn't believe it. Anyway, he says "everything looks great, but if you'd like an EMG which I'm sure you also saw on the internet, we can schedule one in two weeks".He was very nice a assuring, and I kinda got the feeling this was what most of his appts consisted of-people freaking out. He gave me the "most med students" speil, and the "triggered alot by a personal or family health scare" and ended with "lets get the EMG done and get this behind you".I feel better, if not a little ashamed. And I know by the end of the night, that my traitor foot will start acting like the little drummer boy again, but Imma gonna go get that saw from the garage. I don't need the EMG now, that foot just proved to me what my real problem is. I'll have it anyways, that way when I have a relapse I can read the results.AND HERE IT IS..YOUGUYS WERE RIGHT!!!!Hugs to all

 

[JohnnyRocket]

I love these stories because they shed a lot of light on the massive number of people who suffer from BFS. Yeah, we have gained comfort by being a part of this community but what about other BFSers who haven’t discovered “bfsforum.com?” For a neuro to go through the Q/A session like that, how many people does he see per year with these same symptoms and anxiety? A LOT!!

 

[WellsFive]

Are you from OREGON? Ha, Sounds like my doctor. This is real live stuff to us, and the Dr's don't understand what we are thinking!!!!!!!!!!!!! Seriously though we need to accept that we don't have a deadly disease and run with it, they could be telling us we have the worst. I hope they come up with something for BFS, boy that would really save us allot of heartache ect.

 

[MsMaverick]

Not Oregon, worse Michigan. It does say alot that his questions went like that. And this is a small town. I wonder how many patients a big city dr. sees with BFS. I didn't get an official dx. But I don't care if it has a name as long as it isn't you know what. Maybe he'll give me a t-shirt that says "I thought I was dying and all I got was this shirt", after my EMG.

 

[JohnnyRocket]

Yeah, I didn't get an official diagnosis either. Many other forum members have reported the same. My neuro just said "the twitching is benign". I pretty much knew that it was, but its always nice to here it from a guy/gal in a white coat. And let me know he gives you that T-shirt. I travel a lot, and I'm sure I'll be in your area at some point. Would love to swing by and get one!

 

[mommyLDN]

Hugs back to you and so happy to hear that you got the "all good" from your neuro. I never had a doubt. I never got a BFS dxs either, was just told yeah you are twitching but its not being caused by any disease Any way, sounds like you are going to be just fine, and hope you are breathing easier now.Take care uRobynn )