24/7 Twitching: ALS or Something Else?

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octavia031

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Hi, I was wondering if some of your neuro's gave you any timeframe, meaning if the twitching was due to *** when would you start to notice weakness?My calves and feet really go 24/7 and really hard , all the time, I just can't believe this is not ALSI feel them all the time!Dieter
 
HeyAccording to the neuro I see twitching is not the first symptom on most occasions; You will find you have other symptoms and twitching is the result of the dying nerves.Still twitching like a champion after 8 years!!.Sharon
 
Dieter, fascics in ALS may (rarely) be the first and only thing that patients are aware of, but a neuro exam will pick up issues in addition to fascics. Issues patients may not even have been aware of. Fasics only & normal clinical neuro exam = no ALS, not in 1 year or 2 months, but right away.
 
Hi everyone :sick: I'm here after a few years...I posted my first message in 2003...I was twitching a lot and I was sure I had ALS (you can read my old posts)...Now, after 6 years, I twitch from time to time but I'm sure that has nothing to do with ALS...twitching alone really means nothing...no weakness - no ALS...remember...regardsmarcin
 
HeyThanks, thats what a few people here need to help them move on. People from the past that are still fit and well, but unfortunately still being hit with a few twitches.Thanks Sharon
 
I haven't looked at this site for years, started the twitching in early 2003, and was scared *beep* by a stupid googling of the symptoms, you all know what I mean. ... But it has come and gone over the years, but maybe I just don't notice it any more and above all have stopped worrying about it. Still get the occasional 'hot spot' but so what? I am otherwise quite OK and strong as ever, though noticing the encroaching years, but that's another story .... Tony :D)
 
6 % of a disease 1 out of 100.000 get. Thats something like 1 in 2 millions. If you are under 40 it will be 1 out of 20.000.000. And if we are talking widespread fascics then it is perhaps 1 out of 100.000.000. Perhaps even less. Well. Its not like I want to spoil your day, but its far far far more dangerous to take a ride in your car... Or even get out of bed....
 
Angst is right. Actually, the last research proved that the figure is about 13% but NOT WIDESPREAD. Not even one patient had fasciculations in more than one muscle group,i.e. innervated from the same anterion horn cell. Actually, the twitching is present during weakening as the muscle loses its innervation and if the weakness cant be detected (altough its present in its minimal form) patient really thinks he only twitch.About the timespan - every month decreases the chance of getting ALS by 10% and it stops on 99% of course. After one year, there are only few cases described in almost 150 yrs history of ALS.
 
Its still only a theoretical measure we are talking about. Remember that the people here are the most als-checked population-group on the net... As minimum they have been to GP. After that neuro and some even after that, scannings. And the most hardcore anxieties have been thrue the whole thing more than once.And in all the panic that you have, you still forget that als is not dificult to rule out. It CAN be difficult to find, but thats becourse some are complaining about weird things that are going on, that could be all kind of things - in the beginning...But IF the 13% is right, then you have only 1:50.000.000 risk or something like that. But of course - someone has to be no. 2 or 3 on this planet... But its not going to be you, sorry.
 
Exactly like Fox said..many PALS said that it had taken years to get diagnosis, but it was due to confirmation! If other causes are ruled out but patients doesnt meet all criterias for ALS diagnosis, they need to wait. They have weakness, atrophy, twitching..and it doesnt mean ALS, when present in one region, it could be pinched nerve or monomelic nerve disease..thats why it takes so long. So do not worry about that.
 
I didnt mention lifetime at all, but used the likelyhood given by "bart1" in the "back from neuro" - article. If what you say are right, my quote should be stated "every year" in the end. But still: its a very low number.And keep in mind: my number is for:1) people under 402) gets bodywide facics as first sign3) no other symptoms after one year.4) and still is dx-ed alsAnd thats NOT 1 out of 1000 but much, much less.
 
Yea, I guess the bottom line is the risk is minimal. I just felt I had to comment because I see that 1 in 100.000 number on here from and I always wonder where that comes from ...
 
Oh, BFSers are numerous. Far more numerous than PALS. I haven't seen any reliable numbers because there are no records and very few studies in the matter. Aside from the people who twitch and worry about it (us?) there are the people who are aware that they twitch and don't really care about it and also the people who twitch but don't know that they do. My girlfriend twitch. I can sometimes feel violent thumps in her thigh or her arm. But she doesn't know it, and she's a worryer so I don't tell her. My boss stuck out her hand the other day to see if she was shaky. Turns out she had a slight tremor and a very freaky twitch in her middle finger. It kept going back and forth and I immediately thought "Oh my god! Parkinson's". I kept my mouth shut and she just shrugged it off. My dad has jumpy legs. He has to weigh them down with heavy blankets to prevent them from kicking away when he's in bed.The point is most people have funny things going on in their body, but the vast majority are unaware of it or don't really care. If you ask around I'm sure you will come up with a whole bunch of twitchers and shakers and whatnot. Our problem is that we have our bodies under constant surveillance, picking up on every little ache or twitch or feeling of fatigue.So how many people have problems, have had problems or will in their lifetime ever have problems with fasciculations? I don't know. But I would be very surprised if the number was less than 1 in 10.
 

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