2 Years of Twitching: Post Bell's Palsy

NervousnessNoMore

Well-known member
It's been a long time since I posted here. I made a decision many months ago that I needed to leave this site for my own mental health, but also for my family. I was distracted, disengaged, and overall just not fun to be around. I have now been twitching for 2 years. It all started for me after getting Bell's Palsy. I twitch bodywide, random quick hitters for the most part. I do get some hotspots, and have had one hot spot on the bottom of my left foot for as long as I can remember. I have also started getting cramps in the foot from time to time. Sometimes the cramps hit while I am sleeping. I have also gotten cramps in my right thigh. Do I have days here and there that bother me, yes. however it no longer consumes any part of my life. I am happy to say I am myself again, and it started with leaving the internet searches and this site behind. I have never had an EMG, and don't plan on getting one. I went to a neuro early on, and he said I was fine. I don't have weakness, and the twitching doesn't stop me from doing anything. It really is a mental thing. If you let this destroy you it will. I regret that I hurt some people's feelings (mainly Robynn) when I left this site last year, but for me I needed to do it. it was the only way to break the pattern. There are many great people on here that are very helpful, but in the end YOU and only you have to make the decision to change your thought process. You can read back on some of my posts for a more complete picture, but one thing is for sure I am over the anxiety this all caused. There is one common thread that you will see with many people with this condition, there was alway some catalyst that started it. It might be school/graduating, mid life crisis, some serious illness, a divorce, work, or anything else that would stress the body. Once that switch gets flipped I am not sure it can be switched back. So you must learn to LIVE again, with a new perspective on life.Donp.s. My symptoms match Sean's on the other post almost exactly, right down to the foot cramps. His post is great for those who need the reasurance.
 
Hey Don,Great update. Like you I've never had an EMG and I don't plan on ever having one. Everyone has to make their own decisions about whether to stay here or leave, and I don't begrudge you one bit for leaving. I often take extended breaks, no harm in that. Great to hear you are in a good place mentally and physically with this junk. Frances
 
One more important reminder. Yesterday I attended a funeral service for a 14 year old boy who died from cancer. The fact that we worried about a disease we don't even have pales in comparison to not even living long enough to make it into high school. It was a very touching ceremony, and a stark reminder to never take a day for granted. If you live every day worried about dying then you are already dead because you have stopped living.
 
The observations about enjoying life are exactly right. A close friend of mine is sitting in Denver at the children's hospital waiting for a donor heart for her 17 year old son. Puts things in perspective for me....Frances
 
Thank you so much for coming back and posting!! Your post is heartening and the mention about Bell's palsy intrigues me - I've recently started experiencing numbness in my left cheek (near my nose) and sometimes creeping down to my lip. I've been wondering if this is Bell's palsy or if there's some link between it and BFS...
 
wow - thanks tons for that message. And you are so right - if you don't live for today, you have cheated yourself. I am so lucky that I have a sister I am very close to who slaps me silly if I don't do that very thing. It is hard sometimes for us to get to that place and I thank you for telling us how you did it. I do think the problem many of us suffer from is knowledge. They say a little knowledge is a dangerous thing. I say too much knowledge (really information in our case) is a dangerous thing. And, partially thanks to Google, that is what we have - too much information that has turned us *at least temporarily* into people we would not have even recognized a year or so ago. We need to get our game faces back on.
 

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