2 Years of My Twitching Nightmare

[miguelwo69]

this weekend was the 2 year mark of my nightmare and i still twitch the same.
calves nonstop but most of the time mild.
arms and back along with thighs are now more than ever.
3 exams and one emg( done at 5 weeks of twitching) later, no weakness at all. last exam was one year ago.
still run miles and workout like crazy with a trainer.
no loss of strength and still weigh 205lbs .
i guess i will always twitch, mine all started with a great deal of stress and anxiety over health fears.
2 years and i still need reassurance from time to time

scott

 

[holisticdriver]

I just recieved my 1 year medal the other day

 

[myzRationalTommy]

Well, for me it's over 1 1/2 years. One thing for sure, the more I think about it the worse. If I can keep occupied with other stuff (mentally at least), it's a lot better. I can pedal the bike hard and long so I guess that's my proof that all is ok. Do we really get a medal????!!!!!

Ha!

Have a great weekend!
Tom

 

[CapnCrunchy2]

Hi, the last guest posting above was me....I haven't gotten my 1 1/2 year medal in the mail yet. How many years before we get a gold medal??

Tom

 

[sendzou]

Mark...I certainly don't mean to minimize your symptoms, but I hardly think you can describe them as a "nightmare". You're still running and working out. Some of us here can't exercise anymore. Nine months ago I was running 45 miles a week and was on top of the world. Now I couldn't run even 1 mile if I tried.

If your only symptom is twitching muscles, consider yourself lucky.

 

[starGalaxyGazer]

I will soon have been twitching for a year. It started sometime in March with big noticable ones in one calf, progressing to the other in a matter of weeks. They are much less noticable now but are there 24/7. If I take the time to look, there are several a minute all the way into my feet, but are so fine I don't feel a lot of them. I still get the odd bout in other parts of my body but none that compare to my calves.

I'm resigned to it. If they disappear one day I will be overjoyed, but if they stay I won't lose any more sleep over it. They don't hurt and don't restrict me from doing anything. Things could be a lot worse. I "lost" almost 9 months of my life worrying about you- all -know -what. Time to move on.

Karen

 

[dylan.dibber1]

My 1-year anniversary will be in a week. Still twitching a lot, no other sympthoms
regards
Marcin

 

[neySueSid567]

I've passed my four year anniversary. I guess it's really only 3 1/2 since I got the full-blown twitches, but I had my first real incident on Christmas 1999. It's been a long time. Looking back I just wish I'd spent less time panicked about the twitches and more time focussed on my work and projects. Well, I guess there's no poing dwelling on it -- just better not to make the same mistake twice.

 

[BoneDog]

Hello,
Guess many of us are the old timers. I'm now almost 2 1/2 years. Guess I can forget about ALS now, ha ha. I honestly don't know what I'd do without this website. Thank you everyone for the support.
I have periods that I'm almost symptom free, until I look real hard...you know what I mean. Then something triggers an infestation of twitches and I wonder what in the world is happening. Only to have them subside again. It certainly is mysterious, isn't it?
Hugs to you all!
Sue