16 Months of Clean Living: Still Twitching

[journeyer80]

hmmmm well I am coming up on 16 months next month last emg was at about a year actually 10 months into this whole thing totally clean all tests have been totally clean and I have had all kinds trust me lol but guess what still get the twitches the buzzes the vibrations the muscle pains the dizziness the brain fog the joint pain the fatigued feeling the overworked muscle feeling the anxiety the numbness the cold water sensations the foot pain the sleep starts the jerky movements sometimes the little twitches the big ones the unseen ones the slight tremors etc etc nothin has really givin up but I am still alive I can still walk and talk and eat 16 months later and that says something atleast!! my neuro told me one time 10 months into this why are you so afraid ya have als she said the majority of the ppl with it die within two years so you have had this for ten months and your still strong as a ox she also said that day that I dont suspect you have any thing majorly wrong with you and the best thing she could tell me too do is seek counseling for health anxiety lol imagine that!! I am not sure if anxiety is the main culprit here but I know it makes things worse for sure so thought I would come ramble at ya all a bit and say Happy Halloween as well Lata Brian

 

[mommyLDN]

Happy Almost 16 Months!!! I didn't realize we were so close in months in this...I am...hold on, gotta count...17 months in. Wow, wonder what was in the water we were drinking back then?? Musta' been twitchy!! ) You are a great guy, and I hope you are keeping you chin way high up there!!! ) Blessings,Carrie

 

[Quickrider]

Congrats Brian for coming so far. I'm rite there with you on every symptom that you just listed. But you all ready know all that, I think we matched, head to head on every symptom when we talked about it. The symptoms can suck, but we are alive to tell the tale ) Take Care Brian and keep your head up.Your friendRobynn )

 

[journeyer80]

Hi BrianJust reading your symptoms. They sound pretty much the same as mine and I have had this three years with no progression. I think I just have to learn to live with this. I tell my kids I'm better at driving than walking because I get so dizzy when walking. I'm actually better at walking than standing still. When I have to stand and wait in line, that's when I really feel like I'm going to lose my balance and keel over. Do you also get the ringing in the ears and the bad tasting saliva? Take care.Sandra

 

[BarbiePetals]

wow yes I do get the ringing in ears and dizziness is worse when I am standing and sometimes yes I do get bad tastes in my mouth weird huh do you have any info on these symptoms? thanks to the others runner and mommy hope ya guys are well

 

[AussieSurvivor]

19 months here... Carrie, it must have been something in the water. LOL

 

[seadragonsovereign]

Congrat' from down under Brian. 'Strong as an ox' that's what I like to hear! 16 months...If you are like me ( nearly 12 months) you are probably thinking..hmmm..if only I knew then what I know now, but as you know as well as anybody.. there appears to be very few short cuts to coming to grips with what we have ( and have not!)cheersRodger

 

[AllGoodHere]

Barbie: 19 months for me too! Maybe we all bought the same bottled water or beer or something from the same source. Didn't notice any "BFS" recalls on items, though ) .