14 Months of Throat and Body Twitches

[FabulousOne]

Two months with throat and tongue problems. Many face twitches. Today, my body twitches are back big time. They've been there for 14 months so I wonder, could my body twitches be benign - and at the same time, could something bad happen to my upper body, like bulbar als ? No tongue twitching so far, but a lump in the throat (which had disappeared during the last days) and a strange feeling in the tongue, like it's heavy, thick, buzzing, well, I don't know. It's very hard to deal with, becausethe symptoms seem to have no relation with my worrying level. I mean, one day I feel fine mentally - and my tongue hurts, and I twitch everywhere. No swallowing problems so far, nor voice problems, as far as I can tell, but I always have the feeling that these problems are about to happen. Can anyone relate, or give me a word of reassurance ? It's a hard fight.
Fabrice

 

[ydav3yat3s]

Have you had a clean clinical exam and EMG? If so, according to the Mayo clinic, you can be strongly reassured that you do not have ALS.

 

[Pixeldusty]

Fab,

I think the fear is in the back of our minds, always back there, waiting for the opportunity to resurface. No matter that we may have started to believe that these twitches all over our body are nothing serious. Does it seem so strange that swallowing and tongue problems would be next? I don't think so, when I had/have severe anxiety I would start to have trouble swallowing, just thinking about swallowing made me not able to. I lost a lot of weight back then and I could not just believe it was anxiety either. I hate to say this, it is like we are going to keep looking until we find something, so we can say, ah ha!, I knew I was the 1% that was going to be different, though that is really the last thing we want.

I believe you also know deep down there is nothing seriously wrong with you but the mind throws a wrench in those thoughts and when something seemingly innocent happens we see it as the worst. I felt like I had hair on the back of my throat the other day, well that set off everything. I started to notice buzzing, feeling like I was stuttering my words and the worry started in. It stopped but every once in a while it comes back.

This rambling may not make much sense, but all in all I just want to say you don't have it, take reassurance in your dr visits and try to start retraining your thoughts, believing that these are just feelings and you wont let it get the better of you!

It is a hard fight, but you are not alone in this battle. Now get out there and enjoy!