skepticwitch
Member
Hey group. Just wanted to say, hang in there. I just passed my eleven year anniversary. This site was a Godsend in the early days. Like many that visit, I was certain I was in my final days on earth. I even planned my funeral. Seriously! My doctor thought I was nuts and was no help. My nueor, who didn't know anything about BFS either, noticed I had a low homocystine level or something like that and prescribed a vitamin called "Folic Acid". I take one 800 mcg OTC tablet every day. Not sure if this is what helped my condition, but it definitely didn't make it worse. Give it try. Its just a vitamin.The twitching and worrying about the twitching often times kept me up at night. I was averaging only 3 - 4 hours of sleep each night. I started using sleeping pills. That helped.Anyhow, after eleven years, I am not 100 % completely free of twitching, but very close. When I do have twitches, it doesn't freak me out like it did that first year. I hope and pray for the best to all of you that are afraid and suffering from symptoms. I was there once and I survived. So can you!
When I had my EMG where stick the pins in you, my back was on a four day non-stop twitch and the lady conducting test says to me "...sir, will you please stop the twitching in your back or we wont get a good reading" and you know what i'm thinking ".. lady, if I could stop the twitching, I wouldn't be here". They were clueless! I felt weak like I was not going to be able to walk very far. I almost cancelled a trip to the Bahammas that we've planning for a year because I was sure I wouldn't make it back home.I was in a low dark place. Then I found this site. Thanks for the post Garym. You were there in my early days and glad to see that you are still here. And.... I'm still here too!
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