GrizzlyLeader
Well-known member
Without giving the lllooonnnnggg drawn out version of what has been going on with me for the past 11 months, I will give it to you in a nutshell: it is basically like this~ I was a healthy, exercising, 37 year old and the bottom dropped out last May. tarted with a couple of times wetting the bed (had MRI of everything from head down to rule out tumor), a blood vessel popped in my right calf then the weird (I described it like things were crawling on my calves) twiching started but it was in both calves. Had heart tests, blood clots, etc. Stomach would then make me very ill everytime I exercised. Lost 7- 10 lbs in two different episodes of that. Endoscopy and colonoscopy. Have GERD. Twitching moved to entire body with humming and electrical feelings..Everywhere. Tested for Mercury, Lead, B levels, every vitamn def. possible, HIV, Lymes, all clean. Started Lyrica, told I probably had BFS. Stopped Lyrica (w/o DR knowing after two weeks of taking) and had horrible burning in palm of R hand, felt shaky in fingers, felt like rubberband around my wrist, strange feeling in upper arm. HUGE twitch started in R thigh that went on for a week or so. Left that thigh feeling empty and shaky. EMG done. Clean. Neuro felt "something was going on, but not sure what." Didn't think it was the yucky disease. That was as of last Sept. I stopped working out five days a week and slowly began again but didn't do arm workouts as R arm was very sore and twitchy. Hurt to use mousepad on computer, drive, sleep on R side. I still only workout one to three days a week and still can't do certain things without causing soreness and feeling weak on R side. Like step aerobics makes that quad hurt or doing my arms on the elliptical. But weird thing, I can lift weights and not be sore if I do specifically bicep and tricep. I have weeks were the arm is sore, weeks were the leg is. Then weeks when it doesn't. Twitching comes and goes, that I ignore. HERE IS THE BIG QUESTION: Does anyone out there have where one side is effected with soreness and perceived weakness? Always? I mean it doesn't change sides on me. My toes on R side hurt and so do my fingers in the am. I get sore fingers or numb toes on the L side sometimes. But in general, this is staying on one side. My Neuro doesn't seem alarmed by this. I ask him (over and over) if there are others out there like me where it is more one sided. He nods. I need to know if one of you experience this too. The only other constant I have is twitching in my lip if I draw it up like Elvis. I even had tongue twitching last month. It went away, but can I just say....I am scared. I go back for another appt this month. Nervous to go, I have just been pretending this is all normal and ignoring it. Going back to Neuro makes me worry again.Thanks for reading and any response would be wonderful!!!