10 Years with Neuro - BFS

[MerlinMagix]

Back from the neuro today. I have seen hime for 10 years. He diagnosed BFS at the time. In the past 10 years I have gone to him each time I thought I had some weakness and atrophy. It averages about every 2-3 years. Each time I get an exam and an EMG. Today I saw him for the acute onset of a werid feeling in the area beneath my lip. It had been twitching every so often for a few weeks along with a strange sensation of weakness. I thought i saw atrophy. He examined me(said I was in great shape for late 40's) and said he saw nothing unusal. I asked about the disease I always ask about, and he said NO. As it turns out he said get an MRI to R/O anything like MS, and some bloodwork for lymes, etc. He said if I was insistent he would redo the EMG. I wonder if I am like the boy who cried wolf.

 

[TompeteA]

No your not, there is no reason we have to accept this condition, there is nothing wrong with trying to find answers, and maybe the passing of time will allow something to develop that a doctor can pick up on and find some relief for you. I have committed not to go to the doctor for a year, so right now I am counting on JRO on this site to find the answers for me, she is hard on the case.