10 Months with BFS: Seeking Help

[InkedMama]

Hey all. Its been awhile for me. I am not pregnant anymore, I am blessed with a beautiful 3 month old daughter right now soon to be 4 months and I am enjoying every moment of it. It has been 10months with this hell of a BFS. It started like it did the time before with a twitch in my thigh that spread over my body over night..Not a place dismissed. I saw a GP who laughed at me when i mentioned Lou Gherigs..he asked I see a psychiatrist as my exam was fine etc. I didnt find it funny and I actually already had a appt. w/ a psychiatrist. I walked out of there atleast with a little peace but it didnt last long @ this time I was I believe 3 months pregnant. So I seeked out a Neurologist. Lucky me she was the Cheif of Neurophysiology. She got me in the same day because I was so upset over the phone the nurse worried about my well being being pregnant and all and this upset.She did a normal exam (neuro exam) and I passed with flying colors. I left out of there feeling great. Fast a month later and I had anoter freak out because I did not get a EMG. This time I went again and she stuck me on the EMG table literally. She was so calm and comforting and even before she put the needles in me she said this is not als. I assure you. She did the whole right side of my body. I believe 14 sticks, 10 diff muscles and a lot of different rotating insertions..Movement of the needle. She found one small fasic and said "there ya go, BFS". 1 fascic w/out any other occurence.I never went back after that day though I have had a plethra of strange phenomenons.While I was pregnant I got carpal tunnel and I cant say they are back to normal yet as they both cramp and hurt. It could just be BFS I dont know. In NOV I will have suffered graciously just through bfs 11 months.I guess I am just looking for a little reassurance today.Today isn't a bad day but the last few days when I was stressed I had them soooo bad I could hardly stand it.Im usually here to help people but today I need a little bump.thank you,Lovely

 

[MarioMasher]

What do you need reassurance for? Everything that should reassure you is written right there in your post. You've already done all the hard work yourself. ) Go play with your daughter. She probably misses you.

 

[StacyDance]

Sweetie, let me give you a little reassurance. I developed body-wide twitching when I was 24 years old. I was not married and had no children. Fast forward. I am now 36, married and my beautiful daughters are 10 and 7. I have twitched from head to toe and everywhere in between. I have had perceived weakness. I have had cramps and aches and pains. All of the yucky stuff. Just think about the process your body just went through. I went through it twice while dealing with this "lovely" condition. I decided to look at it this way. If my body was developing something sinister, the stress of pregnancy and childbirth surely would have aggravated the situation. You are good. You will be fine. Please do not let this crap rob you of anymore of the precious things that God has given you. Congratulations on your beautiful new daughter! PM me anytime if you want to talk, but try really hard to not let this control your life. You will soon find that being a busy mommy will take your mind off of some of this stuff.Blessings,StacyDance

 

[papillon58]

i can reassure you. you are 11 months into this and getting close to that YEAR marker..you go girl! you are fine-- you should set up a follow up appointment in the near future to make you feel 110% -- you have a beautiful baby, and you have benign fascis-- your doctor told you so point blank. please remain HAPPY even though you are not pregnant xo --Remember, children are a gift from God-- enjoy your present--best, bk

 

[VoidBlade14]

I'm so happy to hear you have a happy, healthy baby. I too am pregnant and have been reading a lot of your posts. I've also been trying to stay calm, but it's hard to do when so many weird things happen to your body along with all of the pregnancy changes. Just try to enjoy every day with your baby--they grow so fast. My other children aer 5 & 7. I see a neuro tomorrow. Very nervous, but will be glad to get it over with.

 

[MarksmanS]

I've posted this a number of times...I read an article about twitching associated with pregnancy. This is one iteration of benign fascics that are actually understood. It's harmless and I mentioned that our friend had very bad fasciculations during her pregnancy which eventually resolved. You don't have a disease...