I was just sitting here realizing I am over 1 year since my symptoms started so thought I would post an update. Just a bit of history.37 year old male healthy other than dx'ed crohns disease 1996, bowel resection in 2001 due to perforation and near death, been in remission since. Sensory symtoms started early june 2007 pins, needles and numbness in hands and feet following a camping trip to the Canadian Rockies, may have been bit by something nasty itchy sore under sandal strap. Month long spotty red rash on forearms and lower legs and feet same time sensory issues started. Saw GP sent me for tests diabetes, Lyme, Hep C, HIV, Rocky mountain fever, chest xrays and a plethora of organ function tests and mineral vitamin levels, all normal. Referred me to neuro long wait in Canada to see specialist. Went to see homeopath put me on some herbs and such, 5 days later noticed twitching left hand, right biceps, googled twitching and panicked. Oddly sensory issues subsided when twitching began. Twitching allover and all sorts of weird stuff going on, bad trembling, dropping stuff, percieved speech problems and weakness, lots and lots of anxiety. Saw neuro in August clinical exam normal told him I was worried scheduled me for EMG in October. Went for EMG several sticks in right arm and leg, all normal, told me it was benign and said it could last a year, two, or a lifetime, suspects possible viral cause. No follow up.Twitch primarily in biceps, triceps, shoulders but also thighs, calves, feet, back, neck, eardrums etc etc. Still fairly strong can do 200 lb pulldown can walk on heels and toes and carry 10 bags of groceries for my wife, still enjoying my life for the most part.Noticed some dents in my body, maybe they were there the whole time, I don't know. Twitch near these dents sometimes, still scares me.I was married in Feb 2008 to a wonderful and beautiful woman from Brazil who I met through some friends here last Aug. Our first child is due in a month or so. I recall asking God to let me live long enough to meet my son, we know it's a boy. I am still here.Sometimes I cry a bit when I am alone. Sometimes I still feel afraid I am an anomally. Overall though I try not to focus on it. Some days I can count the twitches on one hand, these days are rare, but I thank God for them. Other days I twitch so much my calculator would likely have an error trying to count.This board helped me through some rough times, thanks to all.So for new people or even old timers that need a bit of reassurance, I am still here and still feeling strong.
1 Year Update: 37yo Male w/ Crohn's
- Thread starter zinflodia
- Start date
SharonSmoove
Well-known member
hi,nice to see you here, congrat's on the marriage and lots of fun comming your way with the new baby.that was a really honest post, this stuff isn't easy, imagine how alone we would feel without this board. i wish you all the best.regardssharon
cindyandco
Well-known member
Paul: What a story! And you're still here to tell it! That's a praise if there ever was one. Congrats on the marriage (something good apparently happened in the middle of all that) and congrats on the little guy. I have two sons and they are they joy of my life. You won't believe the difference this little angel will make in your life. You will be crying, but they will be tears of pure joy. God sent these two to you an just the right time. Thanks for updating us and giving us encouragement to keep on keeping on! I've always enjoyed your posts.BlessingsCindy
ZekesTraveller
Well-known member
Heres to you the anomoly from another anomoly in Texas! 
snowfl4k3s
New member
Great post. Thanks Paul for sharing your life experience with BFS with us.Daniel
addisonfish
Member
There is absolutely nobody in the entire medical literature, who twitched for >1 year and was diagnosed with some MND. You have the same chance of developing it like every non-twitcher.Having said that, I sometimes still fall into the same pitfalls of psychological turmoil like you do. I am also 37. Let´s worry about something else (e. g. not getting enough sleep with small children).Markus