hello,ofically today is 1 year of my BFS. it started October 2011 after significant stress, overworking and a flu. Yes I come through all the hell - ALS fears, perceived weakness, pains, cramps (have them now still), GERD, all that circus. My recovery started actually with this site and I am so thankful to everybody who maintains and keeps this place alive for sufferers like we are.We are so differernt - young mothers, office workers, people who have GAD and those who do not, etc etc., but we all share same fears and we all are given a chance to turn disease into precious gift. For me this year was really crucial. Not only I can count that I overcome a lot of fears, but I also learned a lot about integrity, I learned to feel that I am me myself, not my disease of my fear. It is incredibly precious, thanks to everybody, thanks to my speaking therapist, thanks to tremendous stories I've read here.I do not know you personally - Chrissy, Matt, Johnny, Suzy, Frances, RainCat, sorry if didn't mention somebody - many of us fellows become like a friends of mine for this year, even if we do not say a word personally.Thanks a lot, let's stay in touch.
1 Year Anniversary of BFS
- Thread starter Gracer
- Start date
Well, I really fluctuate a lot between more calmness nad more fear. When online neuro told me slow twitches between my thumb and index are not like BFS and seems like atrophy (I sent him video that I also posted here) I got severely scared... Now in about month or two if there will be no weakness... I will again calm if this slow twitching after muscle is relaxed after strain (and sometimes just on iteself) is nothing serious. Generally new problems on top of old ones scare me, but then I get used to them from the fear point and I try to go on.Right now I am having right hand ulnar problems at night and some during the day (elbow pain) and I am just looking on the google what are the proper excersises.Right now I have flu (without high temperature) and I think on top of the flu my pain/muscle/joint/neuro problems are worse.Anyway. You really do know a LOT of information and are a LOT of help here. Thanx in my name (I can not say for the others of course) 
Oh, I do have thet too - some twitches after straining the muscle - sometines more or less regular, sometimes buzzing-like, but they really seem to be harmless in a long prospective 
Spasms are more scary to me never was so spasmophilic as now (but considering that all my summer month were a complete mess in terms of schedule... no wonder, and anyway even spasms are much easier now...)
Spasms are more scary to me never was so spasmophilic as now (but considering that all my summer month were a complete mess in terms of schedule... no wonder, and anyway even spasms are much easier now...)JohnnyRocket
Well-known member
Let me bring this thread back on subject....Congrats! Your success story is one I love to hear and seeing you become such a great asset to the community has been great. Thanks for your contribution!!
Thanks Johnny! Foe Jerry: crapms (as far as I use the right word are painful involuntary muscle contractions. Same as happens when you come into cold water. In my case it happens usually wneh I an stretching myself during the night or when i put the shoes on or when i put the bra and have to contract my chest muslces and deltoids, or when I am yawning - with my lower facial and neck muscles. they last a second or two but in worse cases I can feel soreness for a day or two on that place. This all leads me to an idea that my muscles might have insufficient blood supply and easily have to go to anaerobic conditions characterised by specific metabolic byproducts causing soreness . This is rather possible considering my absolutely sitting work so I have to improve that part of my life or I would be crampy wreck!
are painful involuntary muscle contractions. Same as happens when you come into cold water. In my case it happens usually wneh I an stretching myself during the night or when i put the shoes on or when i put the bra and have to contract my chest muslces and deltoids, or when I am yawning - with my lower facial and neck muscles. they last a second or two but in worse cases I can feel soreness for a day or two on that place. This all leads me to an idea that my muscles might have insufficient blood supply and easily have to go to anaerobic conditions characterised by specific metabolic byproducts causing soreness . This is rather possible considering my absolutely sitting work so I have to improve that part of my life or I would be crampy wreck!wiftSwiftquill
Active member
Hi,congratulations also from me!Thank you so much for your caring and effort to help lost souls.It is much appreciated, indeed.I wish you all the best.