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I'm now going on three weeks, and although the effectiveness has waned a small amount from when I started, I'm still finding that my twitching has dramatically decreased on diamox. I do miss being able to taste diet coke accurately though--it tastes bitter and flat now! I also have learned that...

Sorry I didn't mention dosage. I'm taking 250 mg tabs 3 times a day in a 30 day trial, at which time I'll report back to my neuro and get electrolytes tested to see how well I'm tolerating it long-term. This drug won't torch your liver like many of the anti-epileptics. Side effects include a...

It isn't that many of us haven't tried about everything. Nothing I've tried, among everything my neuro has suggested, has worked very well. Benzos, depakote, and others. I've been to Mayo and knocked on about every door I could find to get an answer or solution. Diamox is doing pretty good into...

It has been a couple of years since I posted here last. My neuro, after 7 years of hearing me talk about twitching, decided to trial me on acetazolimide (diamox) as he had heard it helped some people with twitching as it slows neural excitation without the side effects of tegretol and other...

I have been off the group for nearly 9 months, still dealing with BFS. Since then, I went to Mayo, got shocked and prodded, and was pronounced completely normal with BFS and maybe some strange migraines. Since that time, I have had zero anxiety (that's long gone), and have discovered a really...

I'd vote for Mirtazapine at 7.5 mg (1/2 tab). It takes about two weeks of taking it for you not to feel a bit groggy the next day. The only bad side effect is an increased appetite.-Dave

Sigmoidoscopy? Unless you weren't sedated, the whole exhaust pipe (colonoscopy) test has got to be worse. Of course, I don't remember a thing past the anesthetic...-Dave

Yeah, I just had one. The NCV part with the shocks is mostly difficult because of anticipation for the next shock, but they are plenty bearable without ill effect. The EMG portion with the needles into muscles either doesn't hurt at all or can really ring your bells depending on the muscle being...

For me, exercise intolerance consists a few things. FIrst, I hit my cardio max much too easy now (I used to be a distance runner). Then, after doing things like treadmill or eliptical, when I get off, it feels like my legs are made of 1 foot long lead stumps. Then, I can look forward to a day or...

I'm a fresh EMG subject--two weeks ago. The test is a bit uncomfortable (OK, more than just a bit for a few test of the test points), but the discomfort doesn't last. The NCV portion where they deliver shocks (the worst is like getting a hefty static shock from walking across a nylon carpet)...

The problem with migraines is that they are so complex in terms of what they can have for symptoms. I too have had times where my balance is not quite right, or it seems like one eye focuses better than the other. Having opthamalic migraine is characteristic of headaches to come, or may not have...

Well, the tests are done and I'm through with my Mayo experience. I'm clean! Even the GI tests were normal. Gawd that EMG hurt like heck in one calf muscle... So, the final diagnosis is BFS, migraines, and IBS-C. The docs had no answer for the other sundry things like joints going painful in...

With benzos like Xanax, YMMV. Xanax in small doses is one of the few things that works for me when I need it from time to time.-Dave

You're right that Prozac has an extremely long half-life so doses can be missed or spread out without the brain zaps of other meds. If I recall, it is one of the few ADs that pregnant women are allowed to take.I had a hard time with an SSRI antidepressant (escitalopram, or Lexapro), which I took...

There are many medications that are used off-label, especially when a physician seems certain symptoms that are helped by the medication in other conditions. I also was prescribed a beta blocker, which has many uses: Anxiety suppression, heartbeat irregularities, migraines, high blood pressure...

Well, I'm not done with Mayo yet, but wanted to post an update. I've got to go back for a two day test series that deal with some GI things. My EMG/NCV is over (thank God!), and was clean. Dang, the needles in the hand and one in a deep calf muscle that hit the mother lode of pain were the...

I also get headaches that coexist with my twitching, sort of dazing headaches like I've whacked my head hard on something. My neuro calls this a complicated migraine, likely. Likewise, Inderal helped me somewhat.-Dave

I believe that twitching can be mentally induced and can be made much worse. I know this from my own experience. I think the heightened scanning or vigilance brings on increased probablity to twitch and excitement of the nerves in that area.-Dave

What works for me is a very small dose (1/4 mg) of Xanax. This is about the only thing, besides a dose of Benadryl the night before, that works. I take it infrequently so I don't build up a tolerance. It is strange that Xanax works well, while other benzos aren't that effective for me.Meds that...

I find that Benadryl is one of the few things that, if I have not taken it for awhile, seems to help with my BFS for a short time until it becomes ineffective again.That said, Benadryl is a weak anti-depressant working on serotonin reuptake (in fact it was the prototype drug from which many...