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MD,I developed this 11 years ago completely out of the blue. I am 54 now and going through a flare of numbness/tingling in my feet and legs with some pain. I ordered a 6 pack of the Hotshot drink to try when I get a bad flare of stiffness again. I have been corresponding with someone from the...

I have been dealing with this condition since 2005. Currently have a flare of numbness, tingling and burning in my feet and lower legs. By far my worst symptom is muscle stiffness. Saw this treatment for muscle cramping in today's Wall Street Journal that might be worth investigating. I...

Does anyone know the difference between Isaac's Syndrome and Stiff Person Syndrome? My neurologist originally diagnosed me with cramp fasciculations 7 years ago but now is going towards the diagnosis of SPS. He has never mentioned Isaac's but when I look up sign/symptoms of each I don't see...

The test that was negative in my case was an antibody test. I mistakenly called it an enzyme test. Swift_TaySwift20

I had surgery to repair a tear in my medial meniscus on Tuesday and kept my 6 month appointment with the neuromuscular specialist on Thursday. He asked that I follow-up with him after my visit in January. I was tested for Stiff Person Syndrome in January and the enzyme test came back negative...

When I stand the hamstring muscles in both legs keep contracting so much that I have to force my legs to straighten by contracting my quadriceps. This is putting so much stress on my lower back. It's also stressing the attachments of the hamstring muscles at my knees. The left hamstring...

I haven't posted on here in awhile but my leg stiffness continues to get worse. I have had this condition for over 7 years now and for a time it seemed like my condition had stabilized but now its getting worse again. I started getting a really bad flare of stiffness in both of my hamstrings...

Hi, I just explained to Shelly what happened to me. My hematologist/oncologist vist was on March 1st and my father passed away from cancer on March 3rd (diagnosed Dec. 2011) so I have been dealing with a lot of grief in addition to being the trustee of his estate. During my doctor's visit he...

I had viral meningitis when I was about 20 y/o while working a summer job for a landscaping company.Swift_TaySwift20

Mitra, I have not been sick lately and Glitterwater thanks for your concern.Swift_TaySwift20

Finally some good news today. The neuromuscular specialist called me late this afternoon and said the anti-GAD test was negative so that rules out Stiff Person Syndrome. He said the two abnormalities they found were my elevated ANA level and white blood cell count. He said he wanted me to see...

Thanks GlitterFountain. I should know by the end of this week whether I have Stiff Person Syndrome (horrible name) but I will have to wait about 5 - 6 weeks for my hematology appointment. Swift_TaySwift20

I received a call yesterday from Washington University's hematology department to set up an appointment requested by the neuromuscular specialist. The hematologist he wants me to see is in the oncology division and he specializes in lymphoma, leukemia and multiple myeloma. Not a good...

Seven years ago my WBC was normal. I have a full annual physical for work every year and I was able to pull up my past blood test results online from primary care physician last night. In 2008 my WBC count was normal and 2008 was the last time I saw the neuromuscular specialist. Between 2008...

Thanks Gary and RainCat. The neuromuscular specialist called me yesterday morning (never a good sign) and told me the anit-GAD test results are not in yet which would confirm the Stiff Person Syndrome but 2 other blood tests were abnormal (WBC - lymphocytes & ANA). He wants me to see a...

May 2012 will be my 7th anniversary of dealing with an official diagnosis of cramp fasiculations. I have had fasics in my calves 24/7 since and sporadically elsewhere. I get all of the sensory symptoms from my knees to my feet including numbness, tingling, burning sensations and pain. My...

I have found that you have to maintain a constant routine of moderate exercise. My shakiness was really bad trying to workout after coming down with this but if you stick with it the shakiness will go away. It will come back but not as bad if you don't exercise for awhile for instance if you...

soundsoap98,I have had bcfs for 6 1/2 years now. I use to be very active with running everyday and working-out with weights. I had to stop running almost immediately because of the pain I developed in my calves while running. I thought I tore a muscle. I find I have to work into a new type...

SmartMister,Do you have muscle stiffness as one of your symptoms? If you do does the medication help alleviate any of the stiffness? I take magnesium and Zanaflex as needed but the muscle stiffness in my hamstrings is by far my worst symptom.Swift_TaySwift20

I saw this today when I was looking at the Washington University Medical School website in St. Louis. Dr. Pestronk's clinic is where my first neurologists referred me after I presented with cramp fasiculations over 5 years ago. If you live near the St. Louis, Missouri area I can't recommend...