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Hi there, I got a BCFS dx over 2 years ago. I have always thought it was aggravated by excercise. Never had anxiety and still don't. My nuero (who I have not seen since the dx) said 70% chance it was caused by a virus, the other 30% was anyone's guess. I can say for sure that mine is worse...

To all; First time visit. I have been reading all your post and I am so relieved to see similar problems. Six weeks ago I started having twitches all over my body. I have had them before because I lifted a lot of weights in college but nothing like this. The twitches started just above my...

Forgot to mention, my twitching also started before I researched on the internet. In fact, it went on for about 1 month before I thought to look into it. I really thought that I had been overdoing it at the gym and/or was not drinking enough water. Still think the gym is a big contributor but...

Hi there, I also do not think that I have als or ms. I was definitely worried while waiting for my emg, but once I was told "some variant of cramp fasciculation syndrome" I went on my way. That was almost 2 years ago. I like to check in here for updates. I often feel like many people who...

Hi Laurie, I think that the people who post here everyday will probably agree that they suffer from ocd or anxiety. I mean after all, they post here everyday. There is also another group of people, myself included who check in every so often (mostly for comraderie) or for updates. I can say...

Since this started, I have noticed (but never really made a connection) that my hands are stiff, almost an achy,arthiritis feeling. I usually feel this when gripping but it is truly minor and not (yet) worth complaining about. Anyone else have an achy feeling? Jenn

Yeah, I was so excited to read your post. I am sure you feel like the weight of the world has been lifted from your shoulders. I am looking forward to hearing the details of your visit. Jenn

Hi Lilith, I am looking forward to hearing the good news after your emg. The test itself is a piece of cake, nothing to sweat there. During my emg they poked the entire right side and spine. I know the anxiety leading up to the test is excruciating, but it will be all down hill from there. jenn

I'm chiming in a little late, but my prayer just went out to you. We are all thinking of you. Jenn

Peg, I just had a big OMG moment because I have the same problem, but never really related it to bfs. The joints in my knees (definitely the worst), shoulders, elbows and hips pop all the time. When I am at the gym, everytime I do an excercise a joint pops. Tricep pushdown - elbows pop and...

I had lots of fascics show up on emg in right calf and quad. Jenn

Hi, my story: I am 30 years old, 4 years of "natural" gym (not even prot) and I started fasciculating 5 months ago, after a period of intense stress and anxiety linked to my work...Fasc start in my calfs where they still present now a day...I also get frequent fasc in my hands but less than the...

Matt, If anything that story should provide you with reassurance. The woman had profound weakness. She could not excercise with her legs. She could not do a jumping jack or hop on one foot. Can you do a jumping jack? I am sure you can. If you can't, then you might be a bit concerned. As...

Bless, I think you were referring to the story I read as being the same as the one that chin referenced. Actually, it is very similar. In the story I read the patient claimed she initially had a normal emg. She also had fascics and weakness. You are right, in hindsight anyway, it seemed...

Chin, Gary couldn't have said it any better. "Normal" may have meant "inconclusive" not clean. In any event, she COULD NOT excercise with her legs (I think I know the story of which you mention). She got PROGRESSIVELY weaker. In fact, if it is the same woman, before she got her official...

Hey Dave, Thanks for the feedback - that makes total sense to me. Jenn

Think of it this way - you are one of the lucky ones who had fascis. on the exam. I wish I had them... The reason being that if there are fascics but NO OTHER signs of denervation then for sure it is BENIGN. If there are none found then one could always have lurking suspicion if the right...

Hey guys, I am curious as to why some people have an emg and it doesn't show fascics and some people like myself and I think Gary, StephG22 and others had an emg and it does show fascics. Is it as simple as we just happened to be twitching at the time of emg or something else? Really curious...

Hi Diana, An emg can not be done too early, if you are experiencing fasciculations due to als then by the time you are twitching you would also show other sign on the emg. As for why they didn't show up on the emg? Lots of folks here have had their emg not show fasciculations. Others, like...

Hi Jan, and welcome. There are many friends to be had here who can relate to your symptoms. The fact that your gp took the time to do some reflex and basic neuro tests and the fact that they were fine should be very reassuring. To answer your question about muscle stiffness/jelly...