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Maarten,Stop it! Search tongue in the forums....lots of people have tongue twitches....I have had them and hate them.By the way everyones tongue trembles when the stick it out, it means nothing.

Mark,Had the same thing a few months ago. First time on the tounge for me. It was rapid and constant for several hours at a time this lasted for almost a week. I've been twitching for over 4 years now but this one threw me for a loop. Then it just went away. Of course the lips started...

Theo,The pain and burning down your left leg sounds like a pinched nerve in your back. I completely ruptured my L5-S1 disk around 8 years ago and had tremendous pain and burning down my leg...especially in my butt and calf. I had some minor foot drop as well. It could also be piriformis...

I've had BFS for over 4 years now. I twitch 24 / 7 - It just a matter of degrees. If I checked my calves right now I would find a muscle twitching. Sometimes they get downright freaky....look like they are alive they undulate so much. But after over 4 years I tend not to notice or worry...

Jen, I saw your post and see that you are going through the roof with anxiety, even after 2.5 years. I've been dealing with the whole BFS thing for over 4 years now and can still get freaked out by the ever changing symptoms. I will try an give you some facts from a study I found on 16...

I had the dreaded tongue twitch about 2 months ago. I'm not talking about the quivering tongue that everyone gets when they hold their tongue out. I'm talking the full on twitch that jerked my tongue very rapidly. I have had twitching on every other part of my body for over 4 years now and I...

Twitching all over or in one spot ....feeling them or not MEANS NOTHING. I have had every type in just about every location going on 2 1/2 years. Some I feel....the ones in my lower legs I don't. If you were clinically weak or had crazy reflexes than yes your twitching might mean something...

Ginny, Sciatica, bulging / compressed disk, or piriformis syndrome.....check out the sypmtoms. I have a blown disk between L5 and S1 and get pins and needles, arch, toe, ankle and calve twitching and cramping.....over 3 years now. Paul

Fish oil is awesome....frankly I would drop the aspirin altogether and up the intake of fish oil. Also try and find fish oil that guarantees a minimum of mercury. Paul

CPK levels can be raised for a host of reasons. My neuro said that if you sit down in a chair too hard that it can raise your cpk levels, excercise can do the same thing. While high CPK can be an indicater of ALS or MS by itself it really means nothing....it is just a smalll component that a...

Ginny, If it is anything I would guess that you either have sciatica or possibly piriformis syndrome which can mimmick sciatica. I completely blew the disk out between L5-S1 around 5 years ago. My left leg including my foot had problems for over a year. My left hamstring and quads sometimes...

More perspective on the cancer thing. I am unaware of anyone on this board or in Brain Talk Commmunities that has been diagnosed with cancer. I have been following both for over 2 years. I also recall reading in one of the studies don on PNH that the paraneoplastic sympoms the predate a...

Jay, A quick answer to one of your questions.... "I was also wondering how many people here have actually been diagnosed with ALS after months/years of twitching." Answer: 0 Hope that helps! Paul

Ok...Im going to post this and go to bed and leave it alone..... "Globus is the term given to the sensation of a lump in the throat causing difficulty with swallowing when there is no physical cause. One can't, of course, know there is no physical cause unless it's been excluded. Globus...

Ginny, I sent you a PM....but for all that are reading this I would like to point out that our GinniferLynne is a MARATHON RUNNER....;)!!! I have had the same thing happen for years and at one point quite a few years ago I was convinced it was a tumor....it wasn't...nor was it a boiled egg...

DStar, Glad your supplements are helping....I've tried a large variety of things over the past 2 years....the best for me has been flax seed oil. It also helps with joint pain. Make sure you don't over do the B-6 as it can cause neuro problems in too high of a dose. I'm sure that some more...

"My calf and foot twitches have mostly subsided, leaving me with occasional twitching all over, but concentrated in my right fingers. " We all know but still refuse to believe that weakness is usually the first thing noticed by ALS patients. Those very few that present with fasiculations...

Holy Cow....I wish that I had seen that about 2 years ago. Truely amazing video. Paul

Matt, You certainly don't have ALS....sounds like a disk / back problem. Numbess on the outside of your foot is signs of a pinched nerve between S1-L5. This can make you feel unstable, numb, weak, cramps, twitching and if bad enough can cause atophy. Your speech is probably just from...

Hi. Maybe this will help. My husband suffered a syndrome called cauda equine. A disk literally blew out and the "matter" went into his spinal chord and rested on the nerves. Before surgery, he could not lift up on heel/toes (as the nerve was already damaged). Within ONE month, his calf...