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Yulinasir, actually it's funny, in my very firstEMG I also had spontaneous activity in my thumb! But that resolved, it hasn't reappeared in any of the follow-up EMG's

Thanks Gracely! I had my appointment, but she moved the actual EMG to February for a number of reasons. I asked her about the chronic denervation in my last EMG's and she actually told me something very interesting. She said that very recent studies have confirmed that high motor units are often...

Hello all,I'm lying awake worriying about my EMG at 9am. It's my 4th one and the last two haven't been 'clean' (chronic denervation in all tested muscles, no spontaneous activity), so I'm very nervous. I have been twitching for over a year now, plus experiencing some other symptoms (sore ankle...

yes, those were my thoughts... thanks for your input. How long have you had it and tyre there investigations going on?I have my next neuro check-up in a month, let's see what that reveals...

Hmmm, I just can't imagine it's food sensitivities.. I've never had any and been a big cheese eater my whole life. Always healthy and robust. The tongue burning/soreness started along with all my other nerve issues, so I do think it's related. but who knows, it's just a theory...

Hi Bibi,thank you for replying. That sounds very uncomfortable, let's hope the gastroscopy reveals something that's easily treatable. I've had one myself recently, but nothing unusual showed. But I don't have any issues like heartburn, though I have had an occasional lump in throat feeling. I...

Hello, has anyone experienced a sore and burning tongue along with BFS?I'm having a particularly miserable time with all my issues (constant twitching, sore ankle/thumb joint, even palm atrophy etc) at the moment. It's been a year and no improvement in sight :(I've managed to successfully ignore...

Oh and also, I saw that you mentioned that your left calf has felt tighter for a while. I actually have the same in my left leg!

Hey, yes I agree that it's always a relief to hear that someone else has had similar experiences (especially regarding EMG findings!) with no scary diagnosis. It is unsettling though and so hard to let go of the fears. I have good days and bad days in terms of worrying. No good days in terms of...

Hi there,I also had chronic denervation in all tested muscles during my last EMG. Very unsettling, yet I have been told no ALS, as no spontaneous activity was seen, plus my clinical was within normal limits.. The fact that your last EMG's were all normal is more than reassuring! It means that...

Hi German,my hotspot is my foot as well, well both feet really. They are twitching ALL THE TIME. Sorry to hear about your voice scare, it's reassuring though that it's gone back to normal. I have some bulbar concerns myself, as my tongue has lately been extremely sore, like I burned it on soup...

PS: My NCV was totally normal. About 5 months ago there was blockades in median nerve and left leg, but now it's all normal again...

Hello Emilyomouse2, i only just saw your message. Thank you so much for sharing your experience, i can't even tell you what a comfort your story has been for me, especially as you have been dealing with this without a scary diagnosis for so long! Your symptoms do sound incredibly similar to...

Thank you , StoneLeopard. I just spoke to the head of neurology here at the hospital and he assured me that with ALS they definitely look for more than chronic denervation. Absolutely no spontaneous activity was seen, and while I have weakness and atrophy, he reassured me that after 8 months of...

Hello, I'm in hospital right now going through a diagnostic process due to a number of weird symptoms that have been getting worse and worse over the past 8 months. I'm extremely worried :(I first noticed fasciculations in both feet 8 months ago. Prior to that I had tight and 'overworked'...

Thank you very much for responding.. It' so hard to get my head around this. I can walk, but it feels unsteady, and I can't get rid of this terrible weak feeling. I wanna believe that it is just perceived, but I feel myself doubting everything again. A week ago I was fine and thought my normal...

Hello, does anyone suffer from a really weak leg feeling, Almost jelly-like? Mine are really bad, the feeling is always there, even when resting.. Is this a BFS symptom?! I've recently had a a normal EMG after 6 months of non stop foot (and other) twitching and shoulder/arm problems. But now...

Sorry, I talked about the small muscle under my shoulder blade, I meant under my collar bone!! Typing very fast on my phone and making loads of mistakes, sorry.

Hey all,I posted a while back, first with worry, then with the reassuring results of my EMG. I felt reassured and confident to leave my anxiety behind. I went on holiday, in fact I am on holiday right now, to let my nerves settle down, but here I am again, more anxious than ever. I've been...

Hi sparkrlock, thanks for sharing your experience, I can't hear these things enough, it is so comforting to know that other people are dealing with the exact same symptoms and are FINE. I think you are right not to let them haunt you for years to come. This thing has really put my life on pause...