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Vince,I don't post very often on this site but i felt compelled to respond to you. My prayers and thoughts are with you and your family; I am so deeply sorry for this. Thank you for sharing this with us on the board. You truly have a lot of courage to explain your journey. ristinaL91

SparkleKid,Yes! I have had muscle pain since November 2013 which was around one month after this mess started for me. Most of my pain is on my upper right arm and at the top of my right leg- on my back side below my gluteus. My primary neuro. Mentioned that pain is common for twitchers which...

Rages,So glad to hear about your emg results- congratulations! What a relief that is. Take care,ristinaL91

Rages,I don't post too often on here but I was curious about your recent emg results. The symptoms you posted sound identical to mine- I have twitching, pain, and cramping mostly on my right side since October of 2013. I've had three clean EMGs since then. Anyway, wanted you to know that you're...

Pascal,I don't know if the ankle pain that you are experiencing is in any way related to BFS but I can tell you that I have had something similar going on. Several months before my twitching and cramping started, I began to have a dull pain in my left ankle. Like you, the pain was not constant...

Hello Felipe,Did you get your follow up report from your neuro. today? I recalled your post from a couple of weeks ago and was concerned.

Hawk78,Your story sounds similar to mine. If you search my posts, you'll find one that I posted back in February when I had my second EMG. Like you, I am brisk (everywhere) and when tested, I had clonus when tested by my EMG specialist. I knew what it was when I saw it- I was devastated. The...

I forgot to answer your question- no joint issues just twitching, cramping, and pain that is similar to bruises throughout my body.

DesiredLife321,The pain that I have is almost constant- there are brief times that it subsides. The only trigger I can point to with the pain is that it does increase when I have been on my feet and/ or using my arms a lot. The pain is mostly in my upper right arm, right leg, and sometimes in my...

DesiredLife321,I believe I responded to one of your posts sometime ago, but I am not totally certain. Like you, I am eight (almost nine) months into this ordeal. Since then, I have twitched, cramped , and had pain throughout my body. Most of the pain, twitching, and cramping is confined to my...

Nrwtwitcher,I have twitching/ cramping/ pain almost everyday. Oddly enough, some days are worse than others with the cramping, but I am always twitching- especially in my feet and calves. I had a dull, aching pain in my arm for several months that has finally subsided but comes back when I use...

TwitchyMD,I will attempt the video as soon as I can- happy to share.Thanks,ristinaL91

Sometimes when I hiccough, I get three distinct thumps in my right ear and it's done. I have tinnitus outside and apart from the BFS thing (too much loud music in the 80s) but this is something very different- hard thumps in my ear. Strange thing this BFS is.ristinaL91

TwitchyMD,Thank you so much for posting the video! That is exactly what my tongue looks like when it twitches. I get random pops from time-to-time and I can induce the twitches by flexing my tongue in a particular direction. My tongue twitching didn't start until I was a couple of months in to...

yelflowhunter,I have been twitching for over six months now and I have experienced the same symptoms that you have. I have had mild pain/cramping for the last five months or so. Most of it is concentrated to my right side, but I do twitch all over. I've had pain in my arm, in my calves, and in...

KBFS1,I have been experiencing twitching since October of 2013 and it was about a month and a half after that when the cramping started. I've had two clean EMGs since then and am due for a return visit in September of this year if I am still twitching/ cramping at that time. Like you, my...

I also have muscle pain too. I have been experiencing dull pain in my upper right arm for the last four months. It seems to be at its worst when I use my arm a lot. My most recent symptom is the pain in my right thigh when I am going up stairs. These symptoms are frustrating; I am an active...

Did a follow up yesterday with my primary neurologist and she rechecked my ankle reflexes which,thank goodness, were in normal limits. This was quite a change from what I saw on Tuesday that startled me so much. As it turns out, my ankle reflexes seemed to be affected by my anxiety which was off...

TwitchyMD,Thank you for the information. From what my neurologist said, and by what I observed, both reflexes and clonus were symmetrical. I know I was extremely nervous too; when I was having the NCS test done, the technician asked me to point my thumb toward the ceiling. When I tried, I was...

Gary,Thank you for the reply. Regarding the clonus, the neurologist mentioned its relevance to upper motor neuron signs and/ or possible spinal cord damage. He's having me meet with my primary neurologist (his partner) on Thursday to schedule an MRI. He also mentioned that it's possible that I...