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Hi Bibi,My understanding (and I could be wrong) is that you can have a clean EMG in the limbs initially with bulbar onset-but eventually, the EMG would pick it up because the disease would eventually involve the limbs. Bulbar onset is only 20% of cases (of an already rare condition) and usually...

Jenna,Sorry, I meant to comment about the EMG-ALS is everywhere in the body. Not all limbs need testing. My neurologist initially only did the right arm and leg-the dominant side and I had symptoms everywhere. If you are clear in one arm and one leg then you are CLEAR. The only exception...

Hi Leaflea!! and Jenna,The ovarian cyst thing!!! Had one of those removed as a med student in 1990-found because it was SO huge that I could palpate it externally through my abdominal wall. Then came the US-13 cm cyst!! I was 23 years old, never had any health issues, a med student (so I knew...

Sorry forgot to answer your paresthesia question-neurologists can also test for sensory issues and to my mind this would be the appropriate course of action. My young patient with Chilblain's is on Lyrica 150 mg morning and 300 mg evening and it gives her some relief of the burning. I am still...

Hi Jenna,Yes, my "own personal hell" started in September 2013 after a very bad viral illness and then the twitching began-in full force and everywhere!! All new to me. I had just completed a full work up of anemia and weight loss (15 lbs over 6 weeks) with colonoscopy, gastroscopy and CT scan...

Hi Jenna,I have not read all the posts here but I am an MD and have posted here a few times, having been through my own personal hell for the last 18 months. Your symptoms are sensory in nature i.e. the burning/paresthesias. This is not typical of ALS. I also started Cipralex (another SSRI)...

Hi there,YES, most of my twitching is on the left leg (I am right hand dominant), and it does get worse with exercise. It is very annoying and always triggers more anxiety. I have had 2 normal EMGs but the only limb never tested is of course the left leg because before, most symptoms were on...

Hi there,Nice to see another doc here. I am a family physician in Alberta, Canada and have been twitching for one year. It has been a DREADFUL year for me. The twitching of course started all the usual anxieties about ALS-one classmate from high school, one teacher from high school, one...

Lately it is the left calf, it has me so freaked out that I am going back to the neurologist. After my thyroid surgery, it was my left upper eyelid which lasted three weeks!!!

Hi there,I hear you about the health anxiety, it makes us do crazy things. And I am a physician!! In the last year ALS has been on my mind since my twitching began in Sept 2013. I have had 2 EMGs that are normal and am 47 years old. AND I am going to ask my neurologist to do one more in Dec...

Hi there,I hear you about the health anxiety, it makes us do crazy things. And I am a physician!! In the last year ALS has been on my mind since my twitching began in Sept 2013. I have had 2 EMGs that are normal and am 47 years old. AND I am going to ask my neurologist to do one more in Dec...

My understanding from my neurologist is that if you have als, it would show up anywhere you were tested even if there were no symptoms in that limb at that time. Paresthesias meaning numbness and tingling are typical of neuropathy but not of ALS which does not usually present with sensory...

Hi there,I can totally relate to the hamstring/calf symptoms-they have been going on for me for the last 6 months on and off. I have diagnosed myself ( and my colleague agrees-I am a physician) with piriformis syndrome-massage and exercises are helpful for this. If you trust that your...

Hello Andreas,You have just described my symptoms to a T! I noticed the body wide shaking and vibration some time ago but put it down to my anxiety. This morning, I saw my left calf muscle twitching-never seen before but often "felt"-this sent my anxiety over the top!! I have had left leg...

I have also noticed that and posted it a few months ago-very annoying. My neurologist had never heard that before either!Joanne

My last eye twitch lasted about 3 weeks, every day all day following my thyroidectomy-it was extremely annoying especially at work because I use a computer. I have had eye twitches in the past as a teen and never attached much importance to them then or now-and as a family physician (47 years...

Hi Xina,I have also "overanalyzed" the "atrophy" in my left hand-the thenar area specifically. The neurologist looked at my hands carefully and did not believe that there was any. Interestingly, my left hand is smaller than my right because I am R hand dominant and my right hand is more...

Truer words were never spoken! I have worried so much in the last eight months that I don't even remember how to live. In the meantime, I have had two thyroid surgeries because cancer was found on the first thyroid lobe that was removed and I am now one week post second surgery, this time all...

Leaflea,I have never heard of thyroid cancer causing twitching and mine was discovered by accident on a CT scan while investigating some other unrelated abdominal symptoms. I have had many cancer patients over the years with different tumours and have never had even one whether treated and cured...

Hi Xina,Congrats on finally getting your EMG-I went through exactly the same fears that got better the day before the EMG when I spoke to the neurologist I was going to be seeing on the phone and she told me right then that she thought it was benign. I had the test anyway on my right arm and...