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Hi there,I didn't visit this forum a while because of my pregnancy. My twitches reduced a bit since I was pregnant. My daughter was born 6 weeks ago and nog my twitches are more obvious again. They were never gone, but they did reduce. This might be because of hormones, but I didn't exercise as...

I promised to give an update on my situation now and then. I still did not have an appointment with the neuro since June. I think something went wrong, because they told me they would send me a date and I never got it. So maybe the letter got lost in the mail, or they never send it. Normally I...

Well people, we had this discussion before a year ago, but that is what my neuro told me: time is your friend in this. The longer you have no clinical weakness as time goed by, the more we can be sure it's not ALS. But after 5 years it's 100% sure. Before that it might be 96% or something.These...

I have this also, I notice the tired tongue the most while eating pancakes, but also other food. I do not eat chocolate bars :) My jaw also feels tired when I'm brushing my teeth. Can't open my mouth too long. I rest and then I go on. I have this for more then one year now. I also experience...

I'm 4 months now, so could be kicking and twitching both ;) It's true that I have less fears now, so I hope it stays like that.

I got some private messages because I said I would be back in september after my appointment with the neuro, and I didn't ;)So, I tell you why...In August, I found out I got pregnant of my 4th child (unexpected). I never got the invitation of the hospital for another appointment, and because of...

Never noticed that the twitches are related to my cycle, will focus on that. I do have twitches in my vagina now and then, but not during my menstruation.

Hi Leaflea, I saw your private message about my appointment, so here is an update. (not much to tell yet, so that's why I didn't update before)I had the appointment in the 3rd week of July, but at the beginning of July I got a letter from the hospital that the appointment was postponed because...

Hi guys,Just want to inform you all that my sneeze reflex came back after 4 weeks. Don't know what happend, but it matches the other stories about it on this forum. Maybe it is BFS related?Greetz

Hi Gracely,Thanks for your reply and telling me about this other thread. I could'nt find much about this on google, so I know this is a really strange symptom, not really matching with ALS (thank god) either. I found some cases in which they told about a tumor in the medulla actually. This is...

Still hoping this is all something psychological....-may 2013 twitching and pins & Needles-oct 2013 excess saliva feeling, not drooling, just more swallowing and more phlegm-jan 2013 EMG normal, neuro test normal-jun 2014 light swallowing problems with dry food as bread and potatoes...

I have them to. Ears, eyelid, cheek, lip, etc. So this is normal, as far as twitching is normal :)

I got really scared when reading this thread. Of course I try to be realistic and try not to freak out. I know the chance that this happens in someone with BFS is very rare, but... The more I read about it, the more I learn that the onset periode can be very different in anyone. MOSTLY you are...

I have tremors too, but had them all my life, not as bad as this video I must say. Twitching is since may 2013, buzzing (mainly in my feet) and pins & needles (everywhere) too. Had a cramping and moving toe which was moving last weeks a few times. (just posted a topic on that one, because it...

Did somebody ever had that your toe is cramping and while cramping it was moving down a few times? All by itself? This happend 3 times now last week, it scares me! Never had that before... Twitching for one year non stop, every second and widespread. Excess saliva without drooling, sometimes...

Does anyone here experience excess saliva? I twitch for almost a year now. Seven months ago I noticed I had more saliva then before. I have to swallow 3-5 times a minute and when I talk, I need to swallow a lot because saliva is spitting out of my mouth when I don't swallow. Never had that...

Thanks for all those reply's people. It's true that as long as you twitch, you will always have ALS in your mind. Not if you twitch for 10 years, I guess, but when you twitch 1 or 2 years like me, you do. I still hope it will stop someday, but I don't think it will...

Last time I was here was in February. Didn't happen much since, but just wanted to give an update on my situation, because it might be helpful for other twitchers. Still twitching really bad, but nothing else happens to make me feel anxious. The twitching is really annoying me from time to time...

Thanks for sharing this. I have parasthesia, which is a bit like neuropathie. I have pins and needles, which are bothering me big time. It's good to hear that it can recover. Someone I know with the same symptoms told me, her neuro said that you can have an overactive nerve-system which causes...

I have them too, now and then and dislike them as well. But I hate the vagina-twitches the most. Ever had them? No? Then you are so lucky! The suck big time...