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Hi Dennis,first I'd like to welcome you to the board! You've come to the right place.As for your complaints I just want to be honest: given your descriptions and, even more so, the way you are writing about them, I think we are talking about an anxiety/obsessive disorder rather than about...

I just found this thread when I searched the forums for "allergies" and "hay fever".It's really strange, but I also experienced a big flare up in BFS symptoms just when the "hay fever season" began in late march (like many sufferers I'm especially allergic to birches). On the other hand, my...

@ JoshSon:As much as I would agree to your observation that BFS is often a result of information about ALS, I don't think that it is just a question of awareness or "bringing them to the surface of consciousness", like: "You always had these fasciculations and the only difference is that you are...

@LittleLost:Thank you very much for your clarification concerning the "30 seconds vs. 3 minutes"-thing.But to be honest I don't understand it yet: In your previous post you basically said that for a valid EMG the needles must be stuck in the muscle for 90 secondes up to 3 minutes. Now you say...

@TwitchyMD:I think Mario is spot on to explain the reasons why many people are so reluctant to join the study: Those among us who are still caught by fear and anxiety think about other things than a scientific study on BFS and those who have moved on ... well ... have moved on and don't want to...

Hi Xina,you have no reason to worry about **S - quite to the contrary: ANA are anti-nuclear antibodies, i.e. antibodies which attack the nuclei of your cells. An elevated ANA is a hint that some autoimmune reaction is going on in your body and that this is probably the cause of your twitching...

Hi RedFalcon,I know the story is scary. It scared me to hell as well, especially since he had clean EMG's and a clean clinical exam. But please remember that respiratory onset **S is the rarest type of an already rare disease and that it almost exclusively affects people between 60 and 70. The...

Hi FernFinnegan,please don't worry about this.So, now it's yawning?! I really wonder what Dr. Google will come up with next as an "early symptom of **S": Sneezing in winter? Headache after a party? Feeling tired after 12 hours of working?

Hi TwitchyMD,I would really like to participate. The only problem is that I didn't get the reports about EMG and blood test results from my two neuro visits. Hence I could only provide data by filling in the questionnaire. Would that be enough? In addition, both just told me that I had "benign...

@ TwitchyMD:Of course, some occasional eyelid twitching isn't the same thing as BFS. But as JoshSon already said, there must be some connection or a kind of "continuum". I don't think that it is just by chance that I had eyelid and eardrum twitching for a couple of years and then developed BFS...

"Are there more twitchers than we realize?" Definitely yes and there are obviously even more twitchers who don't realize themselves that they are twitching. Count me in as well! I just talked to a former colleague with whom I had worked together for some years from 2002 on.I told him about my...

Well, he didn't say anything about symmetry or asymmetry und I haven't got his report yet. But I think two neurologists and another GP would have noticed a clinically relevant asymmetry if there had been one. I myself didn't have the impression that one reflex was more brisk than the other one...

Hello Twitchydoc,well, he didn't exactly say that the reflexes were a bit brisk in both arms. He did them both and then said somthing like "O.k., a bit hyperreflexive." Maybe I should have asked him, if he was referring only to one or to both arms, but I didn't think about the symmetry thing at...

So, yesterday I had a standard medical check up (for my new job) with my new GP (I moved recently). Everything was fine except for the fact that he thought that my biceps reflexes were a bit brisk/hyperreflexive. He knows about my twitching and I had told him about my **S fears some weeks ago...

Hi Gamindsoc,except for your second point ("twitches you don't feel") my pattern is more or less the same: body wide twitches, hot spots, cramp-like feelings, tightness ... plus: buzzing, humming and vibrating, occasional numbness in some fingers during the night, dull muscle pain etc.And...

Hallo christinasgirl123,na dann erst einmal viele Grüße nach Monnem!And of course thank you the insight provided about EMG's and BFS. Makes me feel a lot more comfortable!

Hi Gamindsoc,Hi Mario,thank you very much for your answers. That's a great relief. There seem to be to opposite schools of thought when it comes to the role of EMG's (TwitchyMD obviously belongs to the other school). But I think you are right, especially because your opinion seems to be the...

Just an example for the contradictory statements which bother me so much:

Hi Gamindsoc,here are my questions as promised. Since I don't have much time this week, it's more a kind of a summary. If you need some references (to studies, paers etc.) I will provide them later:1.) EMG, clinical exam and "waiting time": From reading here and in other places on the internet...

Hi Gamindsoc,I also think, that your idea is really great. I have so many questions from reading too much on the internet and in scientific publications that I'm rather confused sometimes. Such an interview would definitely help a lot.I'll try to write down some of my questions tomorrow (it's...