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I had a neurologist tell me once that *** is not about feeling, but its about failure. Your muscles slowly stop working, they start failing. You may have restless leg syndrome. It causes these awkward crawling feelings in your arms and legs, there are effective treatments for this disorder. Keep...

Please sign this petition!!!! It is very urgent and every signature counts!!! It's a petition for the U.S. FDA to accelerate the approval of Genervons ALS drug. I think this is an awesome cause! Those who suffer from that horrible disease should have the option to try that medication. Thanks...

More good news from Genervons ALS treatment: Genervon Biopharmaceuticals LLC today announced that it has submitted results to the FDA of its single compassionate patient trial (GALS-C) following its Phase 2A (GALS001) double blinded, randomized, placebo controlled ALS clinical trial protocol...

Has anyone here ever had any issues with problems breathing? My oxygen saturation and BP are normal, but for a few days now it seems like I am having to breath harder than normal and like I cant catch my breath... Any thoughts??

I looked in to the heart medication, "digoxin". Current test seem to indicate that this medicine blocks certain enzymes, and therefore motor nerve cells survive against degeneration. This is also good news. Though it will go through clinical trials to prove efficacy in humans, I assume Doctors...

I had this same symptom last year. I'm certain I talked about it somewhere in this forum. Eventually after a few months it went away. I have experienced it a couple of times since then, but it has always subsided.

Located another promising medication for the treatment of ALS: Tirasemtiv. Very positive results which will progress this drug to the final phase 3 trials. This is good news!

I know a lot of us on this forum are concerned about developing ALS. I myself, having been cleared by two different neurologist, still suffer from ALS related anxiety. However recently I was reading about medications that are currently in clinical trials for treatment of this disease, and...

Sounds like you have bruxism. When my anxiety flares up I often clench my jaw in my sleep and will push my tongue into my teeth causing a scalloped tongue appearance. I even experienced the "wide tongue" symptom as well. I attribute this to being hyper-vigilant over my symptoms, and to my tongue...

Does anyone have any suggestions on medications that help alleviate some of these muscle twitches. It's getting near my 6 month follow up with my neurologist so I'm looking for ideas to mention. I tried clonazpem for a while, it didn't help, and I wouldn't want to continue that type of...

I had a neurologist tell me once that ALS is about "failure", not "feeling".

Sensory symptoms such as "tingling sensations" would point away from something like ALS.

Does anyone get what I refer to as "microtwitches"? Basically these feel like one tiny spot twitching. Some of these are not even visible. I have them in my hands, feet, face, neck, lips, along with all my other twitching that happens over inch of my body.

Seems like this battle with fasciculation's is never gonna end. Been dealing with this for well over a year. The twitches are now in my face and my neck. I've never had them there before, so it concerns me. I could even feel my jaw muscle twitching. I don't think there is a muscle in my body...

I donated to the ALSA last night. I indicated on the donation form that my contribution be used specifically for ALS research. I noticed that they have raised over 68 million dollars, compared to the same time frame last year I believe it was only around 2 million dollars. So it appears to be...

That would certainly make sense. I do favor my left leg. It feels like I am walking funny. Like sometimes I am almost coming down to hard on my heal. (No foot drop or anything like that) But he told me it was smaller in circumference, not length wise. My left leg is what started all this mess...

My original neuro has been out of the country so for my follow up this week I seen another doctor. He did a long exam and actually measured my limbs for comparison at a later follow up. He said he my left leg is half an inch smaller than my right. This concerns my so much because my left leg...

I have been twitching for several months now and it seems like my anxiety keeps getting worse. I had a normal EMG/NCV/clinical exam back in November from my neurologist, but that didn't seem to help my fears. Been seeing a psychologist, and that obviously hasn't worked. All my problems seemed to...

Has anyone ever had a consistent twitch in the thenar muscle of their hand. (This is the big muscle below the thumb). Mine has been twitching on and off for over a week now. Starting to worry me a little.

Anyone else have this happen to them? I thought for sure there would be more..???