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    Living with BFS: My Story

    Hello Mrs Red,I am terribly sorry to hear about your Mum. What you need to do, if possible, is to put your Mum's illness to one side and focus objectively on your own symptoms. For me, and I am not a doctor, they are textbook anxiety related symptoms. As you will already know, there is a...
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    Gluten Intolerance: Good Reads

    I agree with Johnny. Dietary or other efforts redirect focus from underlying symptoms. There is, in my view, a significant placebo effect enjoyed by simply feeling that you are taking control and fighting this unknown quantity. For me, I would rather twitch (which 2 years on I still do) and...
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    Twitchy Thighs and Crazy Month

    Hello Will, I just wanted to say that you should hang in there. I've had this for over 2 years now and frequently get more than one twitch in the same muscle at the same time. I have twitched all over, I am not going to list because it is frankly boring. I am about to run my fastest (hopefully)...
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    Seeking Reassurance: Back Pain & Cramps

    Will,As the others have said, BFS is not a catch-all diagnosis for any medical condition that you're not sure about. Having had ruptured and bulging disks in my lumber region, the pain you describe sounds like a disk problem or muscle spasm (back injury). For what it's worth, my BFS kicked off...
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    Thumb Weakness & Self-Testing

    None of us have symmetrical strength. Your grip strength will out-power resistance hand strength. That's the way we're built so your husband should easily be able to grip your extended fingers back together. Stop testing yourself. The sort of weakness you are looking for is pronounced, like...
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    New to Forum: Need EMG Advice

    Twitchy,Your symptoms are textbook BFS and not consistent with those typical in a pathological condition. I assume your doctor will have done a clinical examination of your reflexes and if this is clean and you don't have noticeable weakness i.e. significant loss of function, the EMG is just a...
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    Exposed to Algae? Risky Foods?

    Don't get me wrong, I've had crazy thoughts with this condition too so you're no different to anyone else on here that has wobbles every so often.All the best for a speedy reduction in stress levels!SM
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    Exposed to Algae? Risky Foods?

    Do you seriously think your chocolate milkshake has caused you to develop a disease that only you think you have, or would you say that you are perhaps being slightly irrational? Your problems relate to anxiety not chocolate milk. Whatever happens, don't let your mind get between you and your...
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    New to Site: Twitching Began After Swallowing Issues

    Janethelen,Guarantee you that your Neuro is just going through the standard motions. EMG tests are nothing very exciting if you have already had a clean clinical exam and consultation with the doctor. He/she is just probably pre-empting your request for the test and it will be a formality...
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    Help! Bicep Twitching, No Feeling

    So totally normal its boring. When I had my EMG the neurophysiologist picked up a fasic in my thigh that I didn't feel and was completely uninterested as everything else was fine. Twitches come in all different shapes sizes and feelings. It's wonderful really.
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    Sciatica and Twitching, ALS fear?

    Alex,Your symptoms sound very familiar to mine when it kicked off. My sciatic pain was revealed to be related to a ruptured disk in my lumber. There have been some discussions around back issues being related to bfs but nothing conclusive, unfortunately that's the killer with this; nobody can...
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    Sciatica and Twitching, ALS fear?

    Alex,Your symptoms sound very familiar to mine when it kicked off. My sciatic pain was revealed to be related to a ruptured disk in my lumber. There have been some discussions around back issues being related to bfs but nothing conclusive, unfortunately that's the killer with this; nobody can...
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    Persistent Muscle Twitching Symptoms

    Perfectly normal to be a bit worried - like getting any exam result, except you already know the result this time..If it is anything like my appointment it will go like this:1. Tell me about your symptoms and when it started etc.2. Any weakness?3. Any numbness?4. Detailed clinical neuro exam -...
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    Power of the Mind: EMG Results

    Excellent news all round. Nothing like spending time with the kids to move away from irrational thoughts. All the best. Rob
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    Anyone Had MRI Show Disc Issues?

    Hi,My tests included MRI of lumber as I had bad back pain when twitching kicked off and for months afterwards. This showed disk extrusion (rupture) at L5/S1 and mild root nerve impingement. My neurologist thought this was linked to symptoms but didn't go into detail. Maybe its part of a package...
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    Trying Physical Exercise with BFS

    Hi Jorge,I am an advocate of exercise but it clearly is not individual thing as bfs affects us all in different ways. When my symptoms first started I was really struggling to do anything aerobic and it took many, many efforts to get back to a normal routine. I have sort of forced my body...
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    Anxiety and Fear - Help Needed

    Unless you have developed als between now and your last examination, that's not what it is. You should try to focus on the root cause and the un-palletable thing is that this is most likely anxiety. It's hard to accept. But get used to it. I hope your symptoms improve but recommend you don't...
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    Thanks From a BFS Lurker

    Just have faith that you're fine and gradually build up your training. Remember that EVERYONE twitches and it is normal. I twitch sometimes in weird places and when this kicked off things were crazy with sleep issues twitches for months etc. I still twitch all over from place to place BUT 1. I...
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    Thanks From a BFS Lurker

    Hiyour experience sounds very similar to mine and is textbook bfs. In terms of exercise, I found it hard at first as I seemed to have loads of lactic acid and felt really out of energy but over time I have got back to a good routine and try to have a good workout, say 10k run with weight session...
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    Bedwetting and ALS: Scared at 36

    Ha,ha I meant things not thongs. Dwelling on thongs is a whole new problem..
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