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I would just like to say thank you to the newbie bfs'er who made this post :) it was very comforting and very educational as well! You were very lucky to have gotten in to both neuros so quickly! I would feel 100% reassured if I were you and als would never cross my mind again :) good luck to...

I had an MRI of my lower back it showed two bulged disk but no impingement so they say that couldn't be the cause of my symptoms, however my chiropractor seems to disagree! She says that while laying flat for the mri it spreads the vertibraes out so impingement usually wouldn't show, she said...

Ok yes I'm still self examining.... I have noticed that my right hand is getting really really bony.... it is way skinnier then the left hand and my right wrist is smaller too! I'm terrified this is atrophy!! Please reply with any possible words of reassurance! I wish I could post pics so you...

Talltwitcher.... no Im not a vegetarian.... not sure what's causing the low b12 or vitamin d!

Well that lil glimmer of hope was shot down the drain! Results from Dr today showed my thyroid levels are now normal and my b12 has gone up to 340 something! She went ahead and gave me a b12 injection, also found out my vitamin d level was low it is 23 so she told me to take over the counter...

Last night this happened to me for the first time! I sat down on the couch propped my feet up on the coffee table and next thing I know my pinky toe was moving from side to side almost as if someone was pulling it in and outward motion! It lasted quite sometime! I tell you what it totally scared...

How was the BUSPAR prescribed for you, mine says take 2 to 3 times daily as needed!? What does it make you feel like and how about side effects? I'm always worried about starting new meds... don't want any crazy side effects!! Is the BUSPAR like xanax in a way?

Have any of you ever had low b12 levels? I went to a new Dr today and she was looking back through my chart from the other Dr and noticed that back when all my symptoms were beginning my b12. Levels were on the low side of normal, 200 something! She said that low b12 can cause a lot of...

I had my follow up today with my Dr, she says I definitely need to get my anxiety under control, so she prescribed me REMERON and BUSPAR! have any of you taken either of these medications? Im a constant worry wart so naturally I'm scared to take the medicine for fear of crazy side effects...

I had my follow up today with my Dr, she says I definitely need to get my anxiety under control, so she prescribed me REMERON and BUSPAR! have any of you taken either of these medications? Im a constant worry wart so naturally I'm scared to take the medicine for fear of crazy side effects...

Does atrophy present itself with dents and lines? I have found that i have several dents and lines here and there on my body that I never noticed before!

Guys this is really bothering me! I have only had one reply to my post so I'm thinking that I'm the only one who has this problem :( please let me know if any of you have this same issue!

I have a question for everyone, it may seem silly but I have to know if any of you have this issue too? Ok I have a lot of small facial twitches but when I open my mouth as absolutely far and wide as I can my lips and cheeks twitch so bad they almost bounce! Also when I smile as big as I can it...

Is there anyone out there that can comment on this?

What Im trying to ask is by now would my speech have significantly declined? Or with bulbar onset ALS would it still be the same after four months and the worst is yet to come? I'm sorry everyone Im just scared to death right now!

Months before my full body twitching started I noticed that now and then my words were coming out slurred, I had extra saliva, and was noticing a feeling of food getting stuck in my throat while eating! That was nearly four months ago, I still have excess saliva and food does get stuck in my...

Months before my full body twitching started I noticed that now and then my words were coming out slurred, I had extra saliva, and was noticing a feeling of food getting stuck in my throat while eating! That was nearly four months ago, I still have excess saliva and food does get stuck in my...

I'm am still so very terrified that I may have the start of the dreadful ALS..... do any of you find yourselves constantly self testing your strength and examining your body for changes!? I do this all the time and can't stop! I have lost so much weight for absolutely no reason the past few...

Hello Im sorry but I have another question for you all.... do the bottoms of your feet twitch too? Like in the arch of your foot? Mine are driving me crazy, it's not big hard thumping twitching but rather really light fluttering feeling! Is this something you have experienced too? My twitches...

Jerry2, how long have you been dealing with BFS?