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Tobes - seriously - KUDOS on the incredible writing ... and i mean that sincerely. Try to remember that when anxiety kicks in, "Skimming" also kicks in .... its a strange effect on an otherwise intelligent person (or so I thought i was) ... So cater to the retarded people here (me) and please...

Just want to clarify that I believe this post is actually intended to be about a *MISDIAGNOSIS* of ALS ... and not a diagnosis of ALS. Its about a doctor making an assumption and driving Tobes into a total panic for no good reason. Many may read it as a diagnosis of ALS and as per discussions...

There are a lot of causes of twitching and neuropathies. Mine happened to be gut damage caused by gluten proteins. And as a study I recently posted says, anyone who has unexplained neurological / neuromuscular illness for prolonged periods of time, should get the Deamidated Gliadin antibody...

Correct. Despite doctors telling me I was "just stressing too much" and saying I needed to see a psychotherapist for my hypochondria, I was more intelligent than all of them and ran a Celiac panel on myself. Especially making sure to include Deamidated Gliadin Ab. I finally tested positive...

"There have been multiple studies that show a link between gluten and neurological disorders. In one study of individuals with idiopathic neurological disorders – meaning no known cause was detected – 30 to 53 percent of those patients were found to have antibodies against gluten.""Celiac...

Boy oh boy ... the data just keeps pouring in.-B-

Did you run across the study about the guy who presented with full-on ALS symptoms including muscle atrophy, and it turned out to be Celiac Disease / Gluten Intolerance?Just sayin...-B-

Yet more proof. -B-

I love when the arrogant, critical mainstream medical system finally catches up with the alternative medical system which has been preaching this stuff for decades.-B-

This is a really important article. I still think BFS is a process that happens as a result of something breaking in us. Most likely autoimmune, or less likely a pathogen. But either way, stress has the most significant effect on severity of symptoms. Without any question. While BFS probably...

And here's more proof what your doctor was dead wrong. Written by a Doctor Who actually knows what he's talking about:Please remember, your doctor is just a human being. He only knows what he's been exposed to. If he's been playing too much golf in the last two years, he's not going to know...

Here's another:"Electromyography (EMG) of the ... muscles demonstrated widespread fasciculations""The patient's initial presentation consisted of evidence of upper and lower motor neuron degeneration, and EMG evidence of widespread acute denervation". Caused by Gluten. The take away from this...

Article:-B-

Relevant article:-B-

Thanks Buzz.I got an outstanding response on Phoenix Rising forums too. I typically go there when i want to hear back from folks who are interested in researching and finding out whats wrong with themselves. They've got a ton of knowledgeable people over there.Similar response. More...

My symptom set has always been indicative of some sort of immune disorder. I've always known that, even though doctors in their infinite idiocy rejected it, because my ANA was always negative. I was just pouring through some test results to see when my last ANA was, because I feel like I've...

Nytwister you may find some relief with Low Dose Naltrexone.-B-

With the recent events in this forum, and the recent announcement, I was just thinking...Anyone can correct me if I am wrong here. But there are a LOT of people here who have had BFS for years, and are still worried about ALS. Please keep something in mind. Many of you are researchers and...

Yeah Lauridicin has been on my short-list of supplements (i keep a very short list - i dont like to over supplement) for the last few years. Ever since I found out I had active CMV, I have been taking it to help fight that. I can't say whether it helps or hurts. Maybe I should try a trial...

He's not the most masculine guy out there. He's definitely got "caucasian" features :) And he's dealt with very serious health problems, which got him into the place he's at today with all this research. He had to find his own solutions, and cure his own health problems. So he's a very...