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Hello,Did anyone of you every experienced a tongue twitch that is very strong, almost painful and always at the same spot?I am very afraid of it.

okay. I follow your posts all the time, because I'm twitching the same way you do. I watched your videos on youtube. I was very afraid that the doctors will find something bad. PNH is no common word in Germany. None of my doctors ever mentioned it. Is there a cure for it? What is the difference...

Hi TwitchyMD,I hope you remember me because we talked about this tongue stuff a few month ago. I have bodywide fasciculations, also found by EMG, since 9 years and this tongue stuff started a few years after. I think with the same intensity like Bobajojos. I had several EMGs on the tongue in...

Twitch in a forearm muscle that moved my thumb from side to side: 6 monthTwitch in my biceps, big one: 8 monthKnee: 4 monthTongue: 1,5 years, always the same spot

Hi TwitchyMD,I have BFS for over ten years now but that tongue staff apeared a year ago. I know that you have to deal with this for a few years now. Could you please let me know if that progressed in your case? Are you still diagnosed with BFS or something else?Please please let me know. I am...

Hello,I am anxious because I can provoke twitches on both hands by tapping on the muscle. Is that a bad sign? I read that twitches caused by ALS can be provoked that way. Did anyone of you experienced the same thing? That would calm me down a bit.Thanks

So, this means that you have tongue twitches for over 3 years? Are they always present? Do they vary? Do you also have fine and rhythmic one that you do not feel? I am not worried about the big thumpers I can feel but about the very fine ones that are like shaking of small areas in a very...

Hi everybody, I still try to understand why twitches of the tongue are considered to be a more specific sign of ALS than twitches in other areas by some doctors. One explanation I heard of was, that the nerve that innervates the tongue is a cerebral one. But the nerves that are innervating the...

It is really at rest. The flickering In the video I sent to you has spread out during the last days. The hole tongue is shaking now like this.

My tongue is quivering now all over while it is completely at rest. It looks exactly like the videos of ALS patients on youtube. I can not stop it and my neuro is on holidays. I am so scared. I don't know what to do now.

I thought this forum has been established to give people the chance to share their experiences and to get some help from veteran twitchers. This don't seem to be so. So there is no sense to be a member of it.

Hi everybody, i have a short question regarding a hotspot. I'm twitching 24/7 in calves and feet. But this is random. Every twitch at another place of calf and foot. And I have small spots, at hand or biceps, which are different, because I don't have twitches there all over, but only one single...

Another question to the tongue twitchers. If you make your tongue long and pull it out of your mouth. Does it depend to go to one side? I read that this was a sign of ALS because the tongue leans to the stronger side. In my case it is turning to the right and my hotspots are on the left.

It looks like I frown my forehead but without wanting it. It does it by itself.

Did everyone of you ever had something like a painless cramp of the forehead? I am experiencing this for a few weeks know. It happens only when my eyes are closed. Before or after sleeping or when I only try to relax a bit. All muscles of the forehead and the eyebrows are affected. They all...

I have this too. First I can feel it, then I can see a deep dent and after a few seconds it´s starting twitching very fast and the dent is gone. It is always the same spot and it happens every day to me.

Never heared about isaacs syndrome. Is this something serious or is it going to disable me someday?

Matt-I saw all your videos on youtube and I twitch the same way you do. All over, 24 hours a day, severals hotspots at the same time, sometimes lasting over months. From fine twitches that I can only see, to big ones moving limbs. But during my 8 year career of twitching I never had one single...

I have these hotspots on my tongue but also widespread twitches all over the tongue. No atrophy, weakness, etc. But all this happened within the last 3 month. I´m twitching for 8 years now and I am a very bad twitcher. But this never affected the tongue. So, I´m afraid that this is something...

Thanks for your reply. I am from Germany and I told my neuro that I want his report for your study. That was the mistake. He don´t want this to be published even if we don´t mention his name. I have a video of the twitch. Can I sent it to you via e-mail? It would be so great to hear the opinion...