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Hi David, great job on the research, unfortunately I have nothing else to add as what you've posted is all she printed off for me. Ray

One neuro put me on neurontin which did nothing to help my symptoms so I stopped taking it. My own PC put me on Paxil for generalized anxiety and my BFS symptoms have greatly been reduced. Right about when the Paxil should have started working I also became convinced I did not have ALS and was...

Twitchlots, I hope that you don’t heed the notion that trying to find an answer to your twitching is a “precious waste of time” in fact you’re demonstrating a true concern for your health and I can only commend you for that. Also, don’t kid yourself in believing that all health care...

Twitchlots, do what ever you need to do to find an answer to your situation, I understand exactly what the others are saying but ultimately it's your body, your health and your concern! Even if you don't get the diagnoses that you are looking for at least you can say you tried.

Thanks Sarah! I was writing a reply as your post came through. Good luck with the ankle exercises. I've got a friend to come with me on Friday. I've been doing all this stuff on my own up to now and I realise that I can't any more. Karen

Hey John, I liked how you classified the twitches into two groups (I think we could define more groups, perhaps a survey might help). I too have also noticed that the way some of us twitch is different from each other although there are often similaritites. In regard to your observation about...

Hello Marcin, you would've read in many of my posts that I twitch 24/7 in my calves and feet. The twitches do not stay in one spot but spread throughout these areas constantly. I would say 99.999% of my twitches are single fires before they move somewhere else. Yes, during my EMG my Neuro...

Hey everyone, I'm new to this board... :) I was actually just searching the internet because I get really weird twitching in my legs after I sit down after I excercise. The best I could describe it is "popping" in my muscles... thighs, calves, etc. I don't know if this is related or anything...

Hallo Florian, eine gruess aus Kanada! Ich probiere ein paar saetze auf Deutsch zum schreiben. Ich kenne ganze genau ihr angst, I habe genau die gleich symptomen als sie, vor allem in meine beinen (calves). Es ist genau eine jahr seit sie angefangen habe. Leider weiss ich nicht wieso aber ich...

I too feel your frustration Susan. Do you feel that your BFS is a result of a Flu shot? I often wonder if it was the Flu shot which brought on my BFS. If I had thought that there was any concern I would've never had had that shot. I was at the doctor for something unrelated and just thought that...

Lee, Try to relax (easier said than done!). Remember, a clean MRI and EMG should make you feel much better! (i.e.. no ALS or MS) Plus FOUR exams by the neuro! BFS is very frustrating. Have you been given any medications? Have you tried any of the suggestions for symptom mangement listed on...

I've got this wierd feeling in my throat, it's like something is lodged in there (very small) although I know there is no foreign object there. Is a throat twitch very similar to a twitch on another parts of the body? Thanks Ray

Susan, the conference would be a great idea but I think more realistically a BFS Chat room might be very beneficial for a lot of people. I know I visit this site daily for my dose of BFS news and I think it could be very therapeutic for a lot of people. I have my good and bad days and as much as...

Hey Sarah and Marcin, you'll probably find in a couple of my posts where I mention that I have 24/7 twitching in my legs (below my knees). Let me clarify what I mean, my twitches migrate up and down from feet to calves continuously 24/7. Initially they were not in the feet but just between the...

I too am experiencing pins and needles for about two weeks straight, is that normal or can I expect it to come and go? Thanks Ray

I'm afraid that this BFS thing is getting the best of me. Last couple of months my feet and hands have become sore now my lower legs are burning and painful. I tried advil and Tylenol for some relief but it seems to be minimal, clonazapam doesn't offer much either other than it's sedative...

I too twitch 24/7 in my calves and have done for 7 months now. I have good days and bad but it never goes away. How I deal with it depends on my level of hypochondria. When I'm feeling OK I tend not to notice it too much. I also have achy tired thighs that comes and goes and random twitches...

I too twitch 24/7 in my calves, ankles and feet. I have been for nearly five months. It does wear on me, but I just keep trying to fight the good fight. My biggest problem has been the muscle fatigue/pain in my thighs. But I just try to remember it could always be worse. Do not feel alone...

Thanks John for replying to my post. I've done a lot of reading on this site and I do understand that many people twitch in their calves and feet but I'm just curious how many of these people twitch 24/7. Hey John, how do you cope with this, I'm looking for some good suggestions. Also, do you...

When I read the posts from my fellow twitchers I often wonder if I'm unique in my twitching. The twitching in my calves and feet have been non-stop, 24/7 for close to a year. While others also twitch in these same areas, from what I understand they experience relief (stops) every now and then...