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While I understand you are feeling scared, you really have nothing to worry. You will have a clean EMG tomorrow and should never look back….the bottom line is that if you have BFS, you will continue to twitch like the rest of us, perhaps forever. Nevertheless, you will be a free man tomorrow...

A world-class ALS expert we saw has seen over 2000 ALS patients in his academic career. He said that BFS will never convert into ALS. If you twitch and have no clinical weakness, YOU WILL NEVER HAVE ALS…PERIOD. It doesn’t matter where you twitch, no clinical weakness, no ALS. Doesn’t matter how...

Yeah, sounds like me.The biggest concern is your anxiety. If you cannot control your anxiety you will have a hard time controlling your twitches. For me, I just accepted my twitches as part of my every day thing….in fact, if I don’t twitch, I think there something wrong with me…

I agree with Jeffrey,Some people go a long time worrying about X disease. Go to the doctor and get checked out and get it over with and move on with your life. There is a big difference between clinical weakness and perceive weakness. If you can throw a punch, you have no weakness..period. it...

Hi Forum, I am new to the forum. I just wanted to introduce myself and say HI. I am a BFS’er. My wife is also a BFS’er. Although I have not been formally diagnosed (my wife has, multiple EMG's) I know I have BFS because I twitch and cramp all over the place each and every day. I been twitching...