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I am having the same kinds of symptoms as you right now Gracely. Mostly twitching during the year, but maybe 2 times a year I will get a "flare up" where all symptoms are worse, muscle and joint pains, aching, extra twitching, cramping/spasms, just a general feeling of "inflammation" all over...

Have you visited a professional counselor, therapist or psychiatrist?

electroman,Yes, I have had the tendon snapping. It happens once a year or two, during major flare ups. and it happens all over my body. it's very distressing. but every time it has gone away after some time. usually it takes a couple months for it to subside. usually what helps is relaxation...

and yes, by 2.5 yrs you would see weakness. you are fine. go live your life

sounds ok to me. i had slight neurogenic changes all over in 2010/2012. later emgs were clean and i'm still doing ok today.

I had all kinds of weird abnormalities on my emg back in 2010 and 2012. Including large MUPs of unknown origin. Subsequent EMGs were clean. I'm still doing fine today. Hang in there, lots of things can cause your symptoms.

Your snuff box is SUPPOSED to be sunk in. That's why it's called the snuff box. Look it up. And some of the other spots you're concerned about have no muscle there anyway, just tendons. So it can't be atrophy. Surprised your doc isn't able to tell you this.

We're playing with words here, but since nobody really knows what BFS is, I wonder if SFN can fall under the overall umbrella of BFS. I know St Louis doesn't use the term, but we do, and it's really any condition involving fasciculations that are physiologically benign. Sounds like your...

I wouldn't sweat it. I have some algae growing on my backyard fence and had a toxic cleanup guy come out to take a look and tell me if it was the cyanobacteria. He said no, it's plain jane, cyanobacteria usually requires some type of odd contaminant to cause growth in the first place.

The petition is for Genervon's GM604 (aka GM6), and while I don't have a petition link handy they are readily found online on change.org.EDIT:

It is probably your incredible amount of anxiety that is triggering the twitching, and your focus on the hand. If your EMG was clear SO RECENTLY, then why are you worrying about it? I was once at a drug store drive through. The pharmacist was taking a long time to fill the order, and it was...

I bet dollars to donuts that when you stood up, some saliva flew back into your throat (e.g., by inhaling) and caused a laryngeal spasm, which is a normal protective mechanism. It's happened to me a few times before. Nothing to be worried about. Everything since then is probably your anxiety...

Well my understanding is that the ncv is typically normal in mnd. I would be more worried about abnormal needle emg, but even then it still doesn't mean mnd. Now is there a different disease process attacking the nerves? That's possible but out of our collective realm of "expertise"...

I agree about yulia. What a kind and helpful soul you are Yulia!

I don't have Marfan Syndrome, but I may have something in the connective tissue disorder spectrum. And I have low B-12. hmmm.............

I understand that one of the most impressive things about the drug is that improvements in physical measurements tracked closely with improvements in proposed biomarkers that can be objectively measured. That strongly suggests an actual, measureable improvement.

Another way of looking at it: the guy spent 40 years of his life looking for the holy grail and someone else may have beat him to it. I'd be "cautious" and call for bigger studies, too.Competition, jealousy and politics play a role in the academic world, IMO...

Thank you all. I haven't had any problems since. Hoping it's just one of those things.

Anyone ever done this while awake? Like to the point you can't breathe for a few seconds? I was just sitting there and swallowed and choked on my saliva. Was coughing and struggling to breathe for about 20 seconds. It was terrifying. Been having some bad days. I'm so tired of this. I think I'm...

by the way. i keep seeing potassium abnormalities being associated with periodic paralysis. ask them to check your potassium levels if that hasn't already been done.