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    Honoring Our Experienced Members

    I am also very thankful. You know who you are! Unbelievable people here.
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    Continuous Ear Twitch - Worried

    I am getting a continuous ear twitch. Has anyone had this? I can't seem to find any posts when I search for the word ear. I am worried of course, otherwise I wouldn't be emailing you guys at 4:30 EST. Because the twitch is on a side in which i have had difficulty swallowing and I have seen...
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    Bulbar Onset - My Story

    Hello,I need to say that I also have a similar issue although in my case I sometimes feel like a can't swallow. For me it has happened out of the blue. I swallow and all of the sudden it is as if I have lost coordination, or my muscles aren't doing the job naturally. Then I focus on the fact...
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    Question about Facial Sensitivity

    Hi guys, Thanks so much for responding. Chrissi, I'm glad to know you had this. Did you get lip twitches and tongue twitches too that sometimes coincided with the face symptom. Also Chrissi, you might know this. What is the deal with ALS and pain. Does ALS relate to pain in the muscles...
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    Question about Facial Sensitivity

    Hi everyone, I am getting hyper-focused again and could really use perspective. I am wondering if anyone might have had a similar experience. I have had a strange sensitivity on the right side of my face for more than a week coinciding with more twitches on my lips. I have been touching my...
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    Is Tongue Twitching Worrisome?

    Thanks so much you guys. I hope you are all right, and that one day I can be on the other side to help others in need. Thanks again!
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    ALS Sensory Symptoms: My Worries

    Thanks Matt, I'm truly a mess this morning. I think it is the stress of the upcoming emg. I have so many random facts that I have picked up from the internet that have scared me. For example in the LA TIMES a majority of ALS sufferers have a longer ring finger than pointer (I do of course)...
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    ALS Sensory Symptoms: My Worries

    My doctor dismissed any sensory symptoms as related to ALS, but I can't get it out of my head because I have this very symptom. This article on EHOW (no nothing about the site), said that the earliest symptoms reported by many patients diagnosed with ALS is a tingling sensation or feeling of...
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    Is Tongue Twitching Worrisome?

    Can I appeal to this group with another question. I just can't stop worrying. My tongue feels so strange. The back left side has been feeling itchy and I most definitely see a twitch on the same side in one place then another but over 2-3 minutes. Is this multifocal twitching? Someone...
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    Fearful Before EMG Tuesday

    Hi Everyone,I'm due to have an emg on Tuesday, after begging my doctor to have it earlier. I felt relieved when I heard the news yesterday that I would have it earlier, but then I started freaking out this morning. I am so afraid they will find something malignant. I have been twitching in my...
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    Twitching Tongue - Scared and Confused

    I just realized that you are named twitchy doc. I am so curious how you came to learn all of this?
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    Twitching Tongue - Scared and Confused

    My tongue twitch is in the same area though. So it flickers once and a while, but in the same spot. Is this potentially a bad sign. i also have an intermittent burning sensation on my mouth.
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    Twitching Tongue - Scared and Confused

    It is one in the morning, and after tending to one of my kid's dreams, I went to the bathroom and looked in the mirror only to notice a random twitch on my tongue. I am freaking out. It was on the side of my tongue that appears less muscular. It has happened more than once in this area and it...
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    Seeking Support for BFS Symptoms

    Hi Jen,Thanks a lot for letting me know. It helps to hear from anyone who has similar symptoms.
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    Seeking Support for BFS Symptoms

    Mitra, Thanks so much. I will call! She is so sick of me now, so I am hesitant. I'm super thankful to you for writing and taking the time. I am amazed at how supportive people are. Best,Donna
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    Seeking Support for BFS Symptoms

    What kind of bloodwork would need to be done. I had like a complete blood panel. I don't know if that includes a test for liver function.
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    Seeking Support for BFS Symptoms

    Thanks so much. I think the reassurance helps and I hope you don't mind if I need to ask again later in the week. I gathered from other posts that the longer you have the symptoms without something scary happening the less you feel anxious. How long has it taken you guys? I am on a med now...
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    Seeking Support for BFS Symptoms

    Mitra,Thanks very much. My three year old daughter saw me crying this morning. I feel terrible. It is possible that the whole thing started with the pregnancy. It was very stressful with lots of high risk doctors monitoring me and the baby, who is completely fine. I will take any advice...
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    Seeking Support for BFS Symptoms

    Hello everyone, I am looking for support and advice. I have benefited from reading many posts, but have never sought help directly from this group. Since having my second child, about 10 months ago, I have had a bunch of very strange symptoms that I hope are BFS. In my forty years, I have...
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