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  1. K

    Struggling To Accept Chronic Symptoms

    Hi Micacar,I dealt with some very similar concerns years and years ago at the height of my BFS-related problems. I am a physicist, and so I have a very scientific view of the natural world. One of the things that bothered me most about my twitches was that I never could find a satisfactory...
  2. K

    Life After Twitching: A Personal Story

    Hi everyone, I just want to drop a note of reassurance for people who are new to twitching or new to the board to let you know what your life might be like a few years from now. I was a lurker years and years ago (like from 2003), and way back then I remember thinking "as long as I keep...
  3. K

    Mystery Back Muscle Issue

    Florian, I get this all the time in my stomach muscles. I notice it when I am in bed and I sit up to pull the covers over me. On the way down, I don't lay down smoothly, I lay down in stuttered increments, and my muscles are shaking the whole time. I asked my neuro about it and he said it...
  4. K

    Mystery Twitching Symptoms

    Kee Kee, You should become a member on the board. Gary
  5. K

    Mystery Twitching Symptoms

    Gary- Keep us posted on this upper leg thing. I guess I am too new to really know what you are experiencing. I will keep you in my thoughs. I went through a wierd several weeks with odd weakness in some of my fingers, then I went to a chiro 3x a week and it is finally helping. Maybe you...
  6. K

    Twitch Invasions: My Experience

    same for me: twitches are much worse right when I wake up. In fact, I'll go for days with no twitching during the day time, but then every single time I wake up in the middle of the night I'll be twitching somewhere. It's very often in the spot that I am laying on, like my back or sides. but...
  7. K

    really scared

    Kerri, here is a suggestion of something that has helped me when I start noticing weird little things with my body. I pretend that I don't have any fasciculations whatsoever, and then I ask myself if this new symptom seems scary enough that it might indicate some disease. For example, let's...
  8. K

    Persistent Arm Weakness: What Now?

    Hi guys, I've read a lot on this site about perceived weakness that people have. Like when your legs feel rubbery or you feel like you are too weak to hold your arms up. But it seems that most people say this perceived weakness comes and goes like a lot of other symptoms. I have weakness in...
  9. K

    Neuro Exam Experience and Advice

    Thanks for the input (and the luck!) - guess it might take awhile [it's a morning appoinment, and im desperate not to miss to many lessons...] This might seem like a dumb question, but when you say how many times you fasc; is it how many individual twitches>? Today i kept a tally of my fascs...
  10. K

    Neuro Exam Experience and Advice

    hi M Blaze, the things I remember most from my neuro exams are the following: -detailed questions about the fascics. like 'when did you first notice them?', 'how often do you have htem?', 'how long do they last?', 'where do you have them?', etc. - the doctor checked my entire body to look...
  11. K

    Twitching Linked to Lactose Intolerance?

    hey skinny, that's funny, I DID become lactose intolerant around the time that I started twitching. Actually, I noticed the LI a little bit after the twitches started, and at the time I thought the LI was causing hte twitches. THat was of course, before I looked up twitching on the internet...
  12. K

    Interesting Trivia: Before Internet Age

    Here is a quick bit of interesting trivia that helps me feel better sometimes. One of my neuros told me that prior to the last like ten years(ie, before the internet), the ONLY patients he ever saw complaining about fascics were medical students. I guess they learned about ALS in their course...
  13. K

    Glad CarolMarie Has No Diagnosis

    I think no matter our opinion about carolmarie and her posts, we are all glad to hear that she hasn't been diagnosed. I do appreciate her recent posts though, because she said a lot of things that I relate to and I think those things are important to talk about. To me, the most important part...
  14. K

    Twitching for One Year: A Story

    Nick, I totally sympathize. The longer the fascics last in my hotspots, the more they terrify me. I get them in my face a lot, especially around my lips and in my eyebrows. The way I deal with those when they last long is to remind myself that ALS doesn't really start in the face muscles...
  15. K

    Welcome! Benign Fasciculations Explained

    Hi everyone, I'm new and I'd just like to say s to arron and everyone else who contributes to this site. I've had persisent, horrible, terrifying fascics for two years, seen three neuros and no one has ever mentioned the term "benign fasciculations" to me. For some reason having a doctor tell...
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