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Seriously....hey guys, are you nuts??? I have seen a lot of *beep* happening on here, people showing their worst behaviours when it comes to their anxiety.... Actually one of the reasons I decided not to take part as much anymore as I used to in the beginnings.... Over- dramatizing???? In...

MEP testing is TMS testing. It is a special test for revealing damage of the upper Motoneuron that is not shown clinically yet. They use it here if they have signs of LMN damage on an EMG and want to see what the UMN is doing, or if you are- like I was- patient in a neuroligical clinic which is...

Meaning up to now, this was only the first part of the story. This is not titanic. There will be a good end, just lean back, relax and be glad this BS did not happen to you:)

Docen, they thought they had found fibs and stuff, but that was not the case. You will see in the part where he is sent to Berlin Charite ALS Center. Those docs there btw subscribed absolutely everything written in BFS in a nutshell. And for the widespreadedness: seeing a handfull late- stage...

Lol Tobi. You are making be blush here :oops:

That is exactly the point.... How many stories have you read where someone was " diagnosed" with ALS in the internet after twitching? And then the story ends....well, this would have been Tobis story if he would not have seen the specialists. But how many people do not have the money or - even...

It is a really thrilling one. As a witness of the whole story, I lost my last preganancy - pounds and fit into my before- baby pants again.

Guys, keep quiet. No he does not have ALS. Or any other MND. He has BFS, confirmed by the best ALS specislists in Emilyomousey. Definate. This story will very helpful because it shows: if it looks like BFS, it is BFS. And be awars of too many doctors visits. And if you have clead BFS signs but...

Hi DD :)Nice to hear about an oldtimer:) I am sorry that you still have these BFS "attacks". Right at the moment I have some problems, not with fear of ALS but I try to face the fact that this might be here for a longer time (hopefully nut forever), and although the twitching doesn't bother me...

Increased muscle tension...lol...I don't know if you know my story, maybe you want to check out my old posts. My muscle tension as well as my reflexes were incredibly increased. Well, there's been a lot of discussions about the reasons for BFS, and I do not want to dig those out because they...

I second Jonnythejet. My tremors were incredibly intense, and caffeine definately made my finger tremors worse. I posted a vid on here about them, you should be able to find it via searchg function tagges LSD octopus fingers (or something similar, I cannot remember)

Yes throat pain and even a slight hoarseness plus globus are part of it.That List...... I spent 2 weeks in hospital, could barely walk due to my shakyness and pain. Could not blowfry my hair because of my burning shoulders and arms. I had multiple EMGs, transcranial magnetic stimulation, blood...

Eh no.... Not ALS. Every Symptom you describe is BGS normal :

No I was not going glutene free, I was actually eating a lot of glutene. The diet was not constructed to avoid allergenes, but to avoid mechanical stimulants to the guts like high fibre, but stimulants to the blood sugar. In the meantime another Emilyomouse twitcher wnt through it...

Hyperreflexia is part of BFS, and especially in the anxious phase. Even Clonus and Hoffmann's reflex are quite common in the twitching community, probably due to the stress and anxiety that go along with it. Anxiety causes a permanent increase in breathing speed and with that, a shift in blood...

Most docs here (Emilyomousey) will not order an EMG for fasciculations, because that is simply overkill. Fasciculations without any other problems, have no diagnostric value. The EMG specialist in Mannheim University hospital even has benign fasciculations himself (and was able to show it) ...

Sorry, I inserted the articles into the wrong thread. The scientifocally proven answer to your questions in in you idea- to- help thread

It is absolutely normal to have up to 100 or more faciculations per minute in the arches of your feet., no matter if you have BFS or not. Approx. 99% of people don't know about them because they don't feel them AND have other hobbies than watching their feet with strobe lights. There are...

This is not a medically proved list of BFS symptoms. Back then I just decided to write down all that scary stuff that happened to me on my BFS journey. Worst part for me was the pain. Deep throbbing pain that brought me to tears and did not let me sleep.

Yes, your anxiety story still is my favourite one:) That was a deep valley you went through, and everytime I hear from you I am happy that it turned out that way:)