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Just an update. I had an MRI of the spine (C & T), which all came back normal. I also had a second EMG this past week and it came back normal.Of course, just as I start feeling better, my right middle finger has started twitching (up and down) - I don't see anything my arm or wrist making it...

I have also had some slight tremoring in both arms (essential tremor). But the Neuro said if this were a direct result of the lesion, it should be more prevalant on the right side of my body and the lesion is on the left. She's not ruling it out, but she said you could theorize either way...

I apologize for my ignorance, but I don't quite understand what you are saying. The Neuro said the lesion looks "old/inactive" and was probably there before my symptoms started. Also, it's on the globus pallidus in the basal ganglia in the center of the brain. Is that considered white matter?

Just a quick update...I had a follow-up MRI w/ contrast and whatever the lesion is, it did not show up on the second scan. Based on that, the Neuro thinks it's a calcified lesion (which is disc-shaped) from either an old injury, illness or even something I was born with. She said it does not...

Thanks! You are truly as blessing to this site. I will keep you posted. I'm still waiting for another mri appt. Gotta love the insurance system!

I am sure you're right. That's a messy part of the brain to be putting any blades around. Reality is that's its in God's hands. If its my time, nothing I can do about it. Obviously I hope its nothing serious. But I can't waste time worrying about it.

Yes we did discuss and she said they didn't think it was MS or a tumor. But w/o a contrast mri they cannot be sure what it is. I will let know after the next mri if they figure anything else out. BTW - I've always appreciated your support and encouragement on this site.

First of all, I think it's cool you use the term "mate." And it's cool that we can exchange info and stories from around the globe.The first thing my neuro asked was if I traveled to South America or Central America. I wonder if that is leading up to the warm theory. The MRI lab is referring...

Korikos,The lesion is 5-6mm and located in the left globus pallidus, so the neuro says it may be connected to twitching. Where does the issue stand now w/ your situation? Are the cysts benign? Can you get them removed? Are you just supposed to live with it and move on? Prognosis?Thanks,

I've was diagnosed with BFS 4 mos ago. Constant twitching in the legs and feet (and aches in calves and feet). I had clean EMG and blood work. Last week I went back to Neuro just for some reassurance. She scheduled an mri of the brain and spine to "rule things out." Today she called to tell...

Per recommendation of neuro, went to an internal med doc about vit D. He did blood work right there (they have lab upstairs). CPK came back at 134. He said after an intense leg workout he would not be surprised to see levels over 1000. So 550 the day after a leg workout was very normal and...

The only deficiency I am aware of is my Vit D was a little low (around 20). The Neuro told me to supplement so yesterday I went out and got 1000 mg. I'm going to an Internal Med Dr today per her recommendation. Had a brain and lumbar mri yesterday, but I have to wait a week to get the results...

Thanks for the replies. My Neuro isn't too concerned mostly b/c I had worked out my legs the day before. What does concern her a little is the drastic increase from Jan to May, from 53 to mid 500's. But the fact that I've been working out more can contribute greatly to that. What is frustrating...

Also, as I mentioned, I've been feeling aches and wierd sensations in my left leg and foot. Both legs twitch, but the left just feels strange. I also get random twitches all over (face, arms, stomach, neck, etc) but those are very random, twitch once or twice and disappear. The legs and feet...

I'm 34 year old diagnosed w/ BFS about 3 months ago. Twitching began almost 4 mos ago. Initial blood work was fine. EMG at 3 weeks was clean. However, I went back last week for following and blood work revealed 550 CPK (and slight Vit D deficiency - around low 20s). One noteworthy piece of info...

Thanks! That definitely helps. I know everyone has had the twitching (which is why they stumbled onto this website). But it helps to know that others are experiencing the other symptoms as well. Do you ever feel them more on one side than the other? The twitching seems pretty even, but the...

Thanks. I've been diagnosed by two different Neurologists (from 2 diff centers) w/ BFS. But the foot sensation is new(er). And it does change a little from day to day. I guess the anxiety comes from still experiencing new sensations from this. A lot of symptoms seem almost cyclical, but...

Interesting. My twitching began shortly after I received the H1N1 vaccine. And I had also taken flexerol for a neck injury not long before the twitching. I had thought about the vaccine causing this. I know vaccines can cause an autoimmune response in your body. Now maybe if I get another...

Just over 3 months with BFS. After 3 weeks, had clean EMG and blood work (which led to the diagnosis of BFS by the Neuro). I have the non-stop twitching in the calves and feet, as well as the random "everywhere" twitches scattered throughout the day. However, lately, I've been getting a lot...

In all seriousness, it's good to hear that you find these posts funny. It's encouraging that you once felt this way, but can now look back at it all differently. I look forward to the day I start relaxing about this (which hopefully won't be too far off). Despite all my fears, there is a...