Search results

  1. M

    Dealing with Unwanted Results

    Many of us on this forum have dealt with this same problem.....Health Anxiety at its highest peak. Please believe your doctor(s)! If I could bring back all the time wasted on worry and the hell I put my family through I would. But like yourself I was so deep in the throws of fear, I could not...
  2. M

    Rate Your BFS: A-D, 1-10

    B/C 4. My symptoms really wax and wane. I have only had a fluttering of my tongue under extreme stress. I can count this happening a handful of times in over 2yrs.
  3. M

    Coming to Terms with BCFS

    There are 2 types of ACHR. The nicotinic ACHR is used to detect myathenis gravis. The ganglionic ACHR is used to detect autonomic dysfunction. According to my neurologist the gACHR is highly sensitive and false positives are rare. My paraneoplastic blood series were sent to Mayo for evaluation.
  4. M

    Coming to Terms with BCFS

    I have also tested positive for this antibody. My neuroligist says he believes this is why I have BCFS. I had CT scan from neck to groin to rule any malignancies. He said I didn't fit the profile for cancer either but knew the tests would give me some peace of mind.
  5. M

    BFS - Sharp Nerve Pain in Toes

    I have the same feelings as smithylab, it waxes & wanes. I told my pcp that my big toe hurt so bad they checked for gout. I really don't understand the strange rheumatic symptoms. A rheumy dismissed me saying I didn't have RA but i definitely get joint flares :(
  6. M

    BFS Onset: Sensory Issues or Twitching?

    Mine started with random muscle and joint pain. Felt like the worst flu EVER! the twitching started a few wks later :( Shelly
  7. M

    BFS and Aches: Concerns?

    Yes, I get this also. I don't have a Fibromyalgia dx but achy joint are a sxs that comes and goes for me., like you also stephan the dr. had no explanation. I have seen a rheumy that has ruled out RA even though I was just slightly positive and no Fibromyalgia or cfs. From what I read here, it...
  8. M

    Living with Suspected ALS Symptoms

    You can look up the paraneoplastic series through the Mayo Clinic website
  9. M

    Internal Tremor due to BFS?

    Hey guys, I had my first full upper body morning shake this morning upon waking. Seemed to last as long as I was in that place between waking and sleeping but I guess it could've been happening before I started waking up too? A bit weird but honestly a little bit reassuring as this isn't a...
  10. M

    Hearing from Taylor After Hematology Test?

    Just wondering if anyone has heard from Swift_TaySwift20. He last posted a few months ago as he was soon to be tested by a hematology/oncology dr. I have sent a PM that has gone unanswered. Hoping all is well. If anyone has info, plz pass along.Thanks!Shelly
  11. M

    Gluten Free Diet & Twitching: Help?

    Thumbs up to Mario! I am so sick of reading these fear fueled posts that get everyone so worked up. I know that this is an open forum but TwitchyMD you have been around long enough to know how these post effect people, esp. newbies. IMH opinion if you are still freaking out over a certain...
  12. M

    Ready to Kick the Caffeine Habit?

    If you were drinking coffee everyday don't stop cold turkey, you will possibly get really bad bad headaches ( I know I had these) try to quit slowly, add more milk than coffee etc.
  13. M

    St. Johns Wart for BFS: Anxiety?

    I was looking into it also for something to take once I taper from my AD. I researched it and it can interfere with other drugs so I am hoping that I can just come completely off celexa and not need anything. If you try it please give us a report of how it works for you.Shelly
  14. M

    Decreasing Twitching, Increasing Calfs?

    Hi Ashley, just a thought...I know you are training for an upcoming run, maybe the extra exercise has caused the calves to flare. I know I have been hitting the gym hard lately and the arches of my feet go nonstop for a few hours after exercise. Hope things calm down and good luck on your run...
  15. M

    Defining BFS: Evidence-Based

    I thought it might be useful for anyone visiting this site to have access to empirical evidenced based information. I believe we often confuse our own opinions with fact, or we have a little information which is expended upon by each other beyond a reasonable definition. I thought this thread...
  16. M

    Internal Tremor due to BFS?

    Thanks Shanny! The weird thing is I really don't feel anxious. I was so bad in the beginning I would think I should have had them then, I did have myoclonic jerks horrible in the first few months. Do you find that yours are random throughout the day or upon waking as mine have been occuring?
  17. M

    Internal Tremor due to BFS?

    I have had bfs since october 2010 and have had an occasional buzzing feeling and an arm tremor upon waking but for 4wks now I have had an internal tremor upon waking almost every morning in my trunk. I thought it was due to a medication change so I stopped the new med and started taking what I...
  18. M

    Natural Remedies for Depression/Anxiety

    I asked this question in my other post. Just thought this thread would get a little more traffic. Has anyone used either of these natural remedies or depression and anxiety or have any suggestions for others
  19. M

    Switching to Wellbutrin - Side Effects

    Does anyone have any experience with natural remedies for anxiety and depression like St. John's wort or SAM-e. I have read they have little side effects, just wondering how well they work?
  20. M

    Switching to Wellbutrin - Side Effects

    Thanks ladies for your advice....I will call my dr. on Monday as he is out today. I was really hoping this would work for me. Do either of you take AD & what are you experiences?
Back
Top