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Hey,I've had this for nearly 3 years and my twitching is mainly left sided - especially my face, scalp and neck. I do have some right sided twitching lower down in my body, but it's mostly on the left.I'm currently struggling with a pain on the sole of my left heal, which makes standing for any...

I've had permanent tingling in my hands and feet since this began nearly 3 yrs ago. I have started to get very hot soles since the early winter - which has been great :LOL: as I usually suffer from freezing feet, which I have to warm up on my husband. So he's very pleased with this symptom...

Thanks for sharing that Robynn - reminding me to be 'mindful'. DB x

Since having BFS I've noticed that I jump at things that would never have bothered me before. I have also found that I get almost like an electric shock that runs through my entire body with it too. Sometimes it can be something as silly as a bloke on the tv shouting!DB

I've been twitching for about 2 1/2 years. I've had a bad back for over 20yrs and I'm currently trying to reduce the amount of codeine that I take. I have had painful spasms in my lower back for many years while I'm in bed - usually about an hour before it's time to get up :rolleyes: Since...

Hey!I've been twitching for 2 and half years. I have a coil fitted for contraception. I recently was tested to see if I was menopausal - early menopause runs in my family. The Dr said my oestrogen level was 1600. A menopausal woman's would be about 200 and a 'normal' level is about 800-1000. His...

Hi SteveI have dreadful knots in my shoulders, which my husband massages for me. I have to save up for a professional massage!There are lots of videos on youtube about deep breathing. I learnt years ago when I did yoga. It is one of the best things you can do for your body, but it does take...

Peter - thanks so much for sharing this. I have had back/sciatica issues for 25 years. I will be looking further into this. Keep us updated with any progress.DB

Things I have learned...Neuros never have enough time. GPs are well meaning, but clueless. Read John Kabat Zinns books on Mindfulness and anxiety. Use this site to do some research into meds and take that info to your GP. Do no be afraid to tell your GP that such-and-such a drug is not working...

Hey RobynnMy friend had a proper guard made for her at her dentist - they moulded it to her teeth. She got the most terrible migraines and the tooth guard, whilst a bit of a passion killer :oops:, completely got rid of her migraines. I know I grind my teeth - my jaw muscles are always very...

Thanks for that! :p I try not to Google stuff too much, but I have done with PNH. I'm seeing my GP later, who's at a loss, so I'm going to mention PNH to see if it helps him!DB x

Hi all,I've just been reading some stuff from 2006/7 about PNH. Is PNH a catch-all term for various syndromes including BFS? Has there been any further research? I've been twitching for over 2yrs and I'm about to go and ask my lovely GP for some tests and maybe to look at my meds. I take...

1. Yes - huge amounts.2. No3. I had a serious illness about 10 months before - scepticaemia after a botched op. I was given mega doses of 3 different types of antibiotics. (Not sure if this is relevant)4. No (but lost about 1 1/2 stones with hospital stay and stress)5. No

I have been twitching for just over 2 years - it started in my head with buzzing at the base of my skull and is now pretty much all over.In the last couple of weeks I keep getting really hot feet, mainly at bedtime. The heat then seems to travel upwards and I have to strip off! :unsure: (Given...

I started with scalp buzzing - at the base of my skull. For about a year I only had facial twitching, mostly on the left side. Now I pretty much twitch all over. But, for me, it is the facial stuff that is the most depressing - it's like having constant toothache. :mad: I take Baclofen, which...

Hi KentishmanI'm also sitting looking out at a wintery afternoon - only about an inch of snow here!Like you, I've read lots on the forums and am increasingly reassured about my symptoms. My GP has been very supportive, but doesn't really know or understand what my body is doing. I was referred...

Hey zeustopple,I'm new to the website, but not to BFS. I started with a fizzing at the base of my skull and it slowly spread to the whole of the left side of my head - including eyes at times. My scalp feels permanently tight now. Sometimes my tongue 'vibrates' and sometimes it affects my throat...